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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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mycotoxins

  1. frozenborderline

    An Open Letter to the Open Medicine Foundation, by Kaylin Jones

    https://openletteropenmedicinefoundation.com/an-open-letter-to-the-open-medicine-foundation-by-kaylin-jones/ Another person asking the OMF to look into mold or environmental toxins in ME/CFS. So far they haven't responded. But lets keep trying. If anyone else has experienced environmental...
    • frozenborderline
    • Thread
    • activism biotoxins enviromental sensitivity mcas me/cfs mycotoxins open medicine foundation ron davis
    • Replies: 8
    • Forum: Advocacy Projects
  2. C

    Prevalence of Aspergillus-Derived Mycotoxins (Ochratoxin, Aflatoxin, and Gliotoxin) and Their Distribution in the Urinalysis of ME/...(Wu et al, 2022)

    Prevalence of Aspergillus-Derived Mycotoxins (Ochratoxin, Aflatoxin, and Gliotoxin) and Their Distribution in the Urinalysis of ME/CFS Patients (Wu et al, 2022) Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a known complex, multi-organ system disorder with a sudden or...
  3. H

    Has anyone managed to considerably improve or even cure their MCAS (with say mould or gut bacteria treatment)?

    So as the title suggests I'm wondering whether anyone's managed to improve their MCAS by fixing other ailments, ideally to the extent they can come off MCAS mediator medications or even tolerate high-histamine foods again? I've read MCAS isn't thought to be something you're born with, but...
  4. H

    POLL: Have you been tested for Mycotoxins?

    This directly follows on from this thread which discusses the results of Dr Brewer's study, which showed that 93% of CFS sufferers in his clinic had high levels of mycotoxins in their body, compared to 0% for a healthy control group. I am interested as to whether these results are replicated...
  5. H

    93% of CFS patients tested positive for mold/mycotoxins?!

    So this study has already been posted in the Research section of PR, but the thread has sort of died as it started back in 2013. I am reposting here because it's directly related to mould and mycotoxins and feel it's a useful area of discussion in this area of the site. Here is the link And...
  6. frozenborderline

    ME/CFS "theory of everything" Etiology

    https://walkerstorz.com/me-cfs-etiology/ This isnt the final form of the theory. I have three substantial parts to add, and it will become even more big and unwieldy. :) But I think that its substantial enough that I may as well put it out there for now. @Hip I referenced your dual factor...
  7. H

    Causes of MCAS?

    Hi all, I'm wondering if anyone has any info on what are the possible causes of MCAS? And if someone's looking to try to address the root cause of their MCAS what areas should they look into, and in what order of importance? I'm also interested in whether anyone here has managed to figure out...
    • hb8847
    • Thread
    • food sensitivity leaky gut lyme mast cell activation mast cell activation syndrome mcas microbiome mould mycotoxins sibo
    • Replies: 18
    • Forum: Mast Cell Activation (MCAS)
  8. frozenborderline

    "Go west young man", a podcast interview with a guest who did mold avoidance to put his illness in remission

    Here's a new one, particularly long, in which I interview a friend I knew from school who got sick with similar issues simultaneously to me and ended up pursuing mold avoidance in new Mexico. We talk about his whole journey but at the end we get into his visions for using permaculture to...
  9. frozenborderline

    Outdoor toxins of particular relevance to mold illness patients

    https://paradigmchange.me/wp/outdoor-toxins/ There is a lot of focus on building mold in me/cfs but often outdoor toxins are underlooked, because they are harder to study. But there is a large volume of anecdote suggesting they matter in me/cfs as much as building mold.
  10. I AM

    Would you buy a home that needs low level mold remediation? Asking people who are mold sensitive/toxic...

    WWYD -- What Would You Do? To those who are mold sensitive... I am in the process of buying a house and the mold and mycotoxins tests (Realtime Labs) are being conducted Friday morning. Is there any level of mold or mycotoxin that you would remediate or would you walk away from the deal? Do...
  11. frozenborderline

    The role of mycotoxins and nanoparticles in CFS (why mold may have gotten worse)

    Continued here: https://cfsuntied.net/2014/12/04/and-now-for-something-completely-different/?fbclid=IwAR3ehxDjqnuh5ceOOZqwphK_sbu-2nVEg15rnvLBXXBKjt7MDbwQ-WlJdH4 @Hip @sb4 @Learner1