https://openletteropenmedicinefoundation.com/an-open-letter-to-the-open-medicine-foundation-by-kaylin-jones/
Another person asking the OMF to look into mold or environmental toxins in ME/CFS. So far they haven't responded. But lets keep trying.
If anyone else has experienced environmental...
Prevalence of Aspergillus-Derived Mycotoxins (Ochratoxin, Aflatoxin, and Gliotoxin) and Their Distribution in the Urinalysis of ME/CFS Patients (Wu et al, 2022)
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a known complex, multi-organ system disorder with a sudden or...
So as the title suggests I'm wondering whether anyone's managed to improve their MCAS by fixing other ailments, ideally to the extent they can come off MCAS mediator medications or even tolerate high-histamine foods again?
I've read MCAS isn't thought to be something you're born with, but...
This directly follows on from this thread which discusses the results of Dr Brewer's study, which showed that 93% of CFS sufferers in his clinic had high levels of mycotoxins in their body, compared to 0% for a healthy control group.
I am interested as to whether these results are replicated...
So this study has already been posted in the Research section of PR, but the thread has sort of died as it started back in 2013. I am reposting here because it's directly related to mould and mycotoxins and feel it's a useful area of discussion in this area of the site.
Here is the link
And...
https://walkerstorz.com/me-cfs-etiology/
This isnt the final form of the theory. I have three substantial parts to add, and it will become even more big and unwieldy. :) But I think that its substantial enough that I may as well put it out there for now.
@Hip I referenced your dual factor...
Hi all, I'm wondering if anyone has any info on what are the possible causes of MCAS? And if someone's looking to try to address the root cause of their MCAS what areas should they look into, and in what order of importance?
I'm also interested in whether anyone here has managed to figure out...
Here's a new one, particularly long, in which I interview a friend I knew from school who got sick with similar issues simultaneously to me and ended up pursuing mold avoidance in new Mexico. We talk about his whole journey but at the end we get into his visions for using permaculture to...
https://paradigmchange.me/wp/outdoor-toxins/
There is a lot of focus on building mold in me/cfs but often outdoor toxins are underlooked, because they are harder to study. But there is a large volume of anecdote suggesting they matter in me/cfs as much as building mold.
WWYD -- What Would You Do? To those who are mold sensitive...
I am in the process of buying a house and the mold and mycotoxins tests (Realtime Labs) are being conducted Friday morning. Is there any level of mold or mycotoxin that you would remediate or would you walk away from the deal?
Do...