A discovery by Dr. Sabine Hazan
Dr. Sabine Hazan: "I was drinking a liter of kefir every day and I couldn't find Bifidobacteria in my gut from that liter of kefir. So I tested the kefir in my fridge and basically noticed there was no Bifidobacteria, even though it said on the label...
Abstract
Coronavirus disease 2019 (COVID-19) and associated severity has been linked to uncontrolled inflammation and may be associated with changes in the microbiome of mucosal sites including the gastrointestinal tract and oral cavity. These sites play an important role in host-microbe...
https://www.theguardian.com/science/2023/jul/09/microbiome-chronic-fatigue-me-long-covid-research
I've been following this on Twitter for a while. Nice to see it get some mainstream attention. Self-experimentation at its finest!
Abstract
Background: The present study aimed to evaluate microbial diversity, taxonomic profiles, and fecal short chain fatty acid (SCFA) in female patients with fibromyalgia syndrome (FMS). Methods: Forty participants (19 patients with FMS and 21 controls) were included in the study, and the...
Abstract
Introduction: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) pathogenesis is thought to be multisystemic, including the immune and gastrointestinal systems. A proportion of patients experience gastrointestinal disturbances with evidence suggesting a leaky gut. It was...
Researchers have found differences in the gut microbiomes of people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) compared to healthy controls. Findings from two studies, published in Cell Host & Microbe and funded by the National Institutes of Health add to growing evidence...
The Patient-Led Research Collaborative’s Patient-Led Research Fund announced $4.8 million in biomedical research awards today, funding 9 research projects in Long COVID, ME/CFS, dysautonomia, and associated conditions.
This fund and awarded projects are distinctly meaningful for four major...
What It Is To Be Human:
Holobionts and the Microbiology of Myalgic Encephalomyelitis
Dr. Amy Proal, of the PolyBio Research Foundation, explains how a human body is so much more than just a collection of human cells. Images courtesy of Dr. Amy Proal.
By Bronc
Dr. Amy Proal, of the PolyBio...
Abstract
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a serious, complex, and highly debilitating long-term illness. People with ME/CFS are typically unable to carry out their routine activities. Key hallmarks of the disease are neurological and gastrointestinal impairments...
Nature.com: Early-life viral infections are associated with disadvantageous immune and microbiota profiles and recurrent respiratory infections.
https://www.nature.com/articles/s41564-021-01043-2
@Pyrrhus
The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS)
Authors:
Rahel S. König
Werner C. Albrich
Christian R. Kahlert
Lina Samira Bahr
Ulrike Löber
Pietro Vernazza
Carmen Scheibenbogen
Sofia K. Forslund
Abstract
Myalgic encephalomyelitis (ME) or Chronic Fatigue...
Abstract
As the incidence of immune-mediated diseases has increased rapidly in developed societies, there is an unmet need for novel prophylactic practices to fight against these maladies. This study is the first human intervention trial in which urban environmental biodiversity was manipulated...
Authors: Achilles Ntranos, Hye-Jin Park, Maureen Wentling, Vladimir Tolstikov, Mario Amatruda, Benjamin Inbar, Seunghee Kim-Schulze, Carol Frazier, Judy Button, Michael A Kiebish,
Fred Lublin, Keith Edwards, Patrizia Casaccia
Published on: December 11, 2021
doi: 10.1093/brain/awab320
Abstract
Authors: Asif Halimi, Giorgio Gabarrini, Michał Jacek Sobkowiak, Zeeshan Ateeb, Haleh Davanian, Rogier Aäron Gaiser, Urban Arnelo, Roberto Valente, Alicia Y.W. Wong, Carlos Fernández Moro, Marco Del Chiaro, Volkan Özenci & Margaret Sällberg Chen
Published online: November 24, 2021
doi...
Abstract
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, multi-system, debilitating disability manifesting as severe fatigue and post-exertional malaise. The chronic dysfunctions in ME/CFS are increasingly recognized as significant health factors with potential...
Hi all, I'm wondering if anyone has any info on what are the possible causes of MCAS? And if someone's looking to try to address the root cause of their MCAS what areas should they look into, and in what order of importance?
I'm also interested in whether anyone here has managed to figure out...
This is my opinion on the causes of these illnesses coming from a patient who suffers from these conditions. My opinion is based on my own experience, research from the top scientists studying this, and also other patients such as Jeff Wood, Jen Brea, and others who have contributed a lot of...
Howdy 🤠 folks,
I've not ventured really into the probiotic world other than an unsuccessful experiment with kefir a few years ago which made me feel rough,more fatigued basically.
I'd be nervous about starting out with anything too strong. I am severely affected and am only managing to be out...
I'm not sure if this has been posted before.
Considering how gut bacteria might be connected with ME/CFS I thought some of our members might be interested in this article on NewAtlas: Study finds hemorrhagic brain disease caused by gut bacteria metabolite.
Some excerpts:
I have been sick for a little over a year now and just a few months ago I started having reactions occasionally when eating. The reaction starts by causing my ears to get really red and hot, then my face, chest, shoulders, elbows, knees (basically all joints) becomes really red and hot. After...
There is tremendous support for FMT being close to a panacea with the major caveat being that the donor is in perfect health, with an unperturbed, disease-resistant, curative gut microbiome. It's currently looking like fewer than 0.4% of the population qualifies:
I've done DIY FMTs from 9...