Her GI dr called me and told me it’s all from constipation. Also, the GI dr asked me what a thyroid was when I asked her if gi was related to her hypothyroidism diagnosis earlier this year which was then revoked. … and I had to explain t3,t4 annd tsh testing to her… so yeah. Wish I could tell you guys I’m joking. Even though she goes every day or other day. Same things they’ve been saying for 6 years as my 2 year old had severe middle of night joint pain and sudden food intolerances right. At. The. Same. Time. I was plummeting. So of course I used all my energy back then to research and save her. I saw her invisibility to doctors. I saved her but I knew it was lurking in background. Waiting to strike again. I could feel and see it with some common things her and I had. But I couldn’t speak it or I would get in so much trouble from family. In 2015, I had her tested for Lyme with me. Positive. But my family wouldn’t accept results. Her pediatrician wouldn’t accept results. Said she would have seen signs of Lyme at her birth 😝 mmm. Ok.
But no one wanted to listen. And now, her body has been on fire. In a flare past month at least. So much school missed. Then she got the flu last week and my family left me with her all week to take care of. Which I have systems these days. I’m used to their negligence.
But on Friday morning my husband became angry she was still sick, at me, yes…. She had a 101 fever for days. Full body flu with trouble in chest etc and needed some breathing treatments…. And it was my fault.
Because this is what my family does. They blame life on me since they cannot face or handle their own emotions over the reality of the situation. They think she’s creating illnesses because her mother does too.
So, the insane GI dr told my husband she needs to be in school. She didn’t care about the 99.4 fever left or severe nausea and headaches vertigo my daughter was experiencing. She instructed us how to distract and dismiss my daughters cries when suffering. We are not to engage her and force her to school even if she’s in tears. Basically, I’m not allow to console my daughter if she shows suffering from an’ imaginary’ illness 🧐
Apparently this woman thinks we haven’t already tried to distract and even bribe my daughter at time to see if it shifts her symptoms with offers of a treat if she goes to school all week etc.
So I awoke half alive last Friday with very little hormones since I have many health issues to my mother and husband coming in here and ganging up on me to take my crying daughter from my arms. As we wake up. No warning or gentle wake up. Because the GI dr told them to do it they said.
My daughter looked at me with tears in her eyes saying how can you let them do this. I get so weak walking to the bathroom, etc how can I do a full day at school? I had no idea. I had no notice. I was so ‘good’ in their eyes all week. They did what they do.
They did this same stuff to me.
When I questioned their plan, I was told I’m a psychiatric case and basically like laying in bed for 6 years having people take care of me etc. etc. etc. and that my daughter is contagiously contracting my mental issues of wanting to lay in a bed.
Except my daughter loves gymnastics, horseback riding, roller skating, playing with friends etc. she’s very active normally and actually is saddened lately by how much she misses her friends and activities.
So they took her from me.
Told me I would get to see her when I use good behavior (which equals doing what they want me to do) after I let my mother know that she let me rot in this room for 6 years whilst she was a socialite raising donations for cancer patients etc but never me. Couldn’t be around me. Spread lies to people about me that I was a psych case and nothing truly wrong with me besides fatigue.
Yeah. They broke me.
So, a day later on Saturday, my husband told me if I cooperated with his list that I could see my daughter again. It was a ridiculous list. If she says her tummy hurts, I’m not allowed to acknowledge or react. I’m only allowed to listen to drs and have no opinion of her medical treatment. Etc. On and on. I brought up concerns but was told that I wouldn’t see her. So, I gave in and said yes to everything.
I lost my shit after they took her on Friday.
A dragon came out of me.
A dragon my husband will never forget.
And guess what happened? Mold started popping through in the bathroom. She couldn’t be in our bathroom without immediate allergic reaction that he saw. It all happened so quickly. All the things I’ve been begging these people to look into and check out and remediate….came to a huge head.
We now are getting a new roof tomorrow, a new bathroom next week and mold remediation.
All because I made phonecalls.
All because I was right all along.
Something wasn’t right. I have been telling them for 6 months I think she’s having a reaction to something in our bathroom. I was told I was crazy. No testing etc. and I’m too weak to be able to tackle all of this.
She’s in another doctor appointment right now. Getting breathing treatments. Because people are stupid and don’t listen to common sense. Everyone goes straight to everything is fine and psychiatric woes rule the world.
If people just listened, and actually tried to help us, we might not all be in this position.
Please, me/cfs activists and keyboard warriors from all around the world, remember this, you matter so much. You are making a difference and it takes a village to wake humanity up to this illness. Please don’t ever stop fighting for all of us. I’m broken this week. They broke me. This disease breaks me. But I know you guys are out there still fighting when people like myself barely can anymore. There are so many children that you are helping that have strange conditions. Thank you. Thank you for never giving up for any of us. Even when it’s too hard. And you want to.
I told my daughter when we got to hug again, this isn’t your forever and we are going to figure it out.
It’s so confusing to her because of all the games. She sees the games the doctors play. And if you tell them your symptoms like these, you will often be told it’s anxiety or nerves… and then these children start to lose faith in the system. She’s starting to not trust them despite how encouraging and supportive her father and I are before her appointments etc. So I have to keep telling her the doctors are good they just haven’t figured it out yet. She said if they are helpers snd good then why don’t they believe me? Why does dad and my grandparents not believe me? Why are you the only one that believes me mom? It’s really weird mom. Something isn’t right.
I wonder if I should tell her about my blog one day 😉
In solidarity dear human community of beautiful beings. May you light shine bright, even when it’s darkest.