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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Phoenix Rising Articles
Dr Bell's January 2010 XMRV lecture - full transcription part 1 of 2
Phoenix Rising Team submitted a new blog post:
Dr Bell's January 2010 XMRV lecture - full transcription part 1 of 2
Posted by Cort Johnson
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Written by thefreeprisoner
Transcribed by 'thefreeprisoner'
January 15th 2010
Well thank you very much, it's a great pleasure to be here.
We always try to find some place to go in January and February from upstate New York. [laughter] This is a wonderful place.
Let's see if we can get our slides clicking here. So I have to turn this on... ahh there we are. It's always a bit of a mystery.
[Slide:
Review of XMRV in Chronic Fatigue Syndrome
David S. Bell MD, FAAP
Clinical Assistant Professor,
University of New York at Buffalo,
Buffalo, New York]
I'd like to...
Dr Bell's January 2010 XMRV lecture - full transcription part 1 of 2
Posted by Cort Johnson
Discuss this article on the forums
Written by thefreeprisoner
January 15th 2010
Well thank you very much, it's a great pleasure to be here.
We always try to find some place to go in January and February from upstate New York. [laughter] This is a wonderful place.
Let's see if we can get our slides clicking here. So I have to turn this on... ahh there we are. It's always a bit of a mystery.
[Slide:
Review of XMRV in Chronic Fatigue Syndrome
David S. Bell MD, FAAP
Clinical Assistant Professor,
University of New York at Buffalo,
Buffalo, New York]
I'd like to...
Transcription of Judy Mikovits Prohealth Lecture: Parts II and III
Phoenix Rising Team submitted a new blog post:
Transcription of Judy Mikovits Prohealth Lecture: Parts II and III
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Written by thefreeprisoner
Transcription by Kim
Judy Mikovits
Section 2 (Video #1: 27+ mins to 40:08)
On some of these patients we looked three and four times for the DNA in the unstimulated cells. So this is just that pellet that I made when I sorted all the various samples. I just held one as white cells so that I could make DNA later or RNA later, depending on the technique I wanted to use downstream. So, it’s important that this was in 68 out of 101 samples. It was 68 out of 101 patients and it clearly says that in the paper. So, at any given time, depending on...
Transcription of Judy Mikovits Prohealth Lecture: Parts II and III
Discuss this article on the forums
Written by thefreeprisoner
Transcription by Kim
Judy Mikovits
Section 2 (Video #1: 27+ mins to 40:08)
On some of these patients we looked three and four times for the DNA in the unstimulated cells. So this is just that pellet that I made when I sorted all the various samples. I just held one as white cells so that I could make DNA later or RNA later, depending on the technique I wanted to use downstream. So, it’s important that this was in 68 out of 101 samples. It was 68 out of 101 patients and it clearly says that in the paper. So, at any given time, depending on...
Transcription of Judy Mikovits Prohealth Lecture: Parts VI and VII: Q & A
Phoenix Rising Team submitted a new blog post:
Transcription of Judy Mikovits Prohealth Lecture: Parts VI and VII: Q & A
Posted by Cort Johnson
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Written by thefreeprisoner
Transcriptions by Advocate, JAS, Lily, thefreeprisoner, Kim & garcia of the Phoenix Rising Forums
Question: Before any of the questions I just wanted to say thank you because through your work and your collaboration, you’ve bought more excitement to the CFS community and your collaborators have than in 2 decades. And you’ve also brought more interest in the illness than we’ve probably seen ever, so I thank you.
Judy Mikovits: You’re welcome. [Applause]. That’s interesting, because the reviewers of the paper didn’t really know...
Transcription of Judy Mikovits Prohealth Lecture: Parts VI and VII: Q & A
Posted by Cort Johnson
Discuss this article on the forums
Written by thefreeprisoner
Transcriptions by Advocate, JAS, Lily, thefreeprisoner, Kim & garcia of the Phoenix Rising Forums
Question: Before any of the questions I just wanted to say thank you because through your work and your collaboration, you’ve bought more excitement to the CFS community and your collaborators have than in 2 decades. And you’ve also brought more interest in the illness than we’ve probably seen ever, so I thank you.
Judy Mikovits: You’re welcome. [Applause]. That’s interesting, because the reviewers of the paper didn’t really know...
Transcription of Judy Mikovits Prohealth Lecture: Parts IV and V
Phoenix Rising Team submitted a new blog post:
Transcription of Judy Mikovits Prohealth Lecture: Parts IV and V
Posted by Cort Johnson
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Written by thefreeprisoner
Transcribed by Sproogle
...the response elements that might give us a clue as to the pathogenesis and then Bob Silvermans lab showed the same thing. He showed that androgens stimulate transcription (the replication and division of the virus). So here's a clue to the disease because we know the only two diseases so far that are associated with this retrovirus are prostate cancer (a hormone responsive disease) and CFS (one that's thought to occur primarily in women).
Interestingly that I didn't say that I knew is LNCaP is androgen...
Transcription of Judy Mikovits Prohealth Lecture: Parts IV and V
Posted by Cort Johnson
Discuss this article on the forums
Written by thefreeprisoner
...the response elements that might give us a clue as to the pathogenesis and then Bob Silvermans lab showed the same thing. He showed that androgens stimulate transcription (the replication and division of the virus). So here's a clue to the disease because we know the only two diseases so far that are associated with this retrovirus are prostate cancer (a hormone responsive disease) and CFS (one that's thought to occur primarily in women).
Interestingly that I didn't say that I knew is LNCaP is androgen...
Dr Bell's January 2010 XMRV lecture - Part 2 of 2 by 'the freeprisoner'
Phoenix Rising Team submitted a new blog post:
Dr Bell's January 2010 XMRV lecture - Part 2 of 2 by 'the freeprisoner'
Posted by Cort Johnson
Discuss this article on the forums
Written by thefreeprisoner
[If]part 1 of this transcription is here[/URL]]
When you look at XMRV at this point, it seems to me that this is a very good theorietical cause for the illness but that's gonna take some time before that's proven. And I'm happy to say that if it's proven to be the cause then we'll go from there. If it's disproved, then I'll say OK, but I want it to be disproven by science not politics. If it's put aside because of political inconveniences then I'm not going to be able to accept that. But if scientifically, it can be shown that this is not the cause...
Dr Bell's January 2010 XMRV lecture - Part 2 of 2 by 'the freeprisoner'
Posted by Cort Johnson
Discuss this article on the forums
Written by thefreeprisoner
When you look at XMRV at this point, it seems to me that this is a very good theorietical cause for the illness but that's gonna take some time before that's proven. And I'm happy to say that if it's proven to be the cause then we'll go from there. If it's disproved, then I'll say OK, but I want it to be disproven by science not politics. If it's put aside because of political inconveniences then I'm not going to be able to accept that. But if scientifically, it can be shown that this is not the cause...
A Look Back at Dr. Reeves CDC
Phoenix Rising Team submitted a new blog post:
A Look Back at Dr. Reeves CDC
Posted by Cort Johnson
A look back at the Pro's and Con's of Dr. Reeves Tenure at the CDC
THE PRO's - despite the antagonism towards Dr. Reeves there were some pro’s to his program
A commitment to research - whatever you want to say about Dr. Reeves he was a vigorous ME/CFS researcher. We can’t know what the internal milieu at the CDC was like but at least in public he presented the disease as a serious disorder that was worthy of research.
Documenting economic losses and prevalence - CDC studies establishing high prevalence rates (Wichita study) and economic losses (approx. $10 billion/year) provided much needed documentation of this disease’s impact...
A Look Back at Dr. Reeves CDC
Posted by Cort Johnson
A look back at the Pro's and Con's of Dr. Reeves Tenure at the CDCTHE PRO's - despite the antagonism towards Dr. Reeves there were some pro’s to his program
A commitment to research - whatever you want to say about Dr. Reeves he was a vigorous ME/CFS researcher. We can’t know what the internal milieu at the CDC was like but at least in public he presented the disease as a serious disorder that was worthy of research.
Documenting economic losses and prevalence - CDC studies establishing high prevalence rates (Wichita study) and economic losses (approx. $10 billion/year) provided much needed documentation of this disease’s impact...
Dr. Reeves Out at the CDC
Phoenix Rising Team submitted a new blog post:
Dr. Reeves Out at the CDC
Posted by Cort Johnson
In a startling announcement on 3pm on Friday the CFIDS Association of America reported that the man who’d vowed to outlast everyone, Dr. Willam Reeves of the CDC, was out and that Dr. Elizabeth Unger was temporarily taking over controls of the CDC's CFS Research program.
Certainly, no one expected this. At the end of the recent ten year evaluation period the CDC had appeared to turn blind eye to all the complaints; neither the CFIDS Association documentation of a huge amount of waste in the program, or later the IACFS/ME’s or...
Dr. Reeves Out at the CDC
Posted by Cort Johnson
In a startling announcement on 3pm on Friday the CFIDS Association of America reported that the man who’d vowed to outlast everyone, Dr. Willam Reeves of the CDC, was out and that Dr. Elizabeth Unger was temporarily taking over controls of the CDC's CFS Research program.Certainly, no one expected this. At the end of the recent ten year evaluation period the CDC had appeared to turn blind eye to all the complaints; neither the CFIDS Association documentation of a huge amount of waste in the program, or later the IACFS/ME’s or...