Ok I've seen a few things written about Doxycycline in this post, so thought I'd mention my experience.
I went on Doxycycline about 9 months after I first got CFS.
I was only 15 when I started taking it and I was put on it because I had acne (teenage spots!) on my face. Anyway I new nothing about doxycycline helping CFS untill now when I read this post!!
I was on Doxy for 3 years and yes thinking back, I wasn't as ill as I am now BUT I certainly wasn't well.
The thing which stands out in my mind is, when I STOPPED doxycycline, oh my god I have never been so ill in my life. (I stopped taking it as my spots had cleared up!)
but what it did to my health coming off it was crazy. Basically I had a fever, sickness and vomited constantly for months...and stomach pain. And I had the worst POTS symptoms ever, I couldn't even stand up, my legs went so weak and I was then bed bound for one year. and I never went out alone again.
And imagen how shocked I am right now to see this post about this medication.
I've stopped medicines before and never had a reaction like this. I had cfs the whole time I was on it, so clearly when I stopped it, it caused a huge problem with my cfs.
So that's what happened to me when I came off doxycycline. I was on it a long 3 years!!!
'The thing which stands out in my mind is, when I STOPPED doxycycline, oh my god I have never been so ill in my life.'
You should read up on Lyme Disease Doxy is the recommended treatmentand when we stop treatment before infection is cleared then symptoms do deteriorate significantly.
See UK charity www.lymediseaseaction.org.uk
or read some of the information on my blog.