I know @Learner1 was prescribed Valcyte not so long ago. Perhaps @Learner1 you might like to comment on whether doctors can still prescribe Valcyte for ME/CFS and get insurance to pay for it.
I was originally prescribed Valtrex for high CNV and HHV6 antibodies. My insurance was ok with a low dose, but balked at double the dose, which my doctor wanted me on. Then, my new a doctor, a top ME/CFS specialist, found that I had chronic, reactivated EBV, that everyone else had missed, as he did a PCR test.
He then prescribed generic Valcyte, 2 450mg tablets twice a day, which somehow, my insurance covered, even though they said they were saving me $3,000 a month which was more than the generic Valtrex. I am extremely thankful. Within 30 days, my significant brain fog cleared. I stayed on it for 20 months, the last 6 at 900mg per day, and my doctor had me stop it only after I had 4 negative EBV PCRs over a 9 month period - he's very experienced with EBV and took it quite seriously. Acyclovir would not be as effective.
I also had an immunodeficiency and was put on LDN at the same time as Valcyte. Three months later, I started IVIG, which I am still on, these days for the autoimmunity triggered by the EBV. I believe people who aren't helped by antivirals either don't have a virus that that antiviral helps, they have other infections the antivural doesn't treat, or their immune system is too dysfunctional, and they don't stay well afterwards as they got off them too soon.
As for names, no one in my part of the world has heard of ME or SEID. They do understand ME/CFS or chronic fatigue syndrome, unfortunately.