Which drugs are effective against herpesviruses HSV, EBV, CMV, VZV, HHV6, HHV8?

heapsreal

heapsreal

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Judee said:
Do you think you have an IgG antibody deficiency maybe? (Is there such a thing?)
I'm IgM deficient and one doctor and one lab said that could impact testing results for me.

Also a little off topic but I was reading a lot of comments on Amazon regarding B2 and many of them mention that it helps with their migraines...sometimes even that it was doctor recommended.

Maybe it wouldn't do anything for you but I thought I'd mention it. :)

Of course, there are threads here with warnings about it possibly causing depression so maybe check those out before buying any.

Edit: Found this webmd page with more comments regarding B2, even some warnings: https://www.webmd.com/vitamins-supp...957-riboflavin?drugid=957&drugname=RIBOFLAVIN
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I have had my igg sub classes tested and they were fine. I have got tests from 20yrs ago close to my cfs onset with igg ebv positive test than about 7 years later they were gone/negative.

The book 'Oslers Web' which is about the cfs outbreak in Incline Village, this was something Dr Dan Peterson was noting in many of his pts. After a certain time period, they would lose these supposed life long igg antibodies to ebv.

I don't know if this means that we have chronic ebv or not or possibly can get it again as we have not antibodies.

I've never seen any answers too it. A few local drs and specialists I've seen here in Australia, when I've shown them my test results have just gone, mm that's interesting and nothing more.

I usually just say I have issue with varicella and cmv but it wouldn't suprise me if ebv is doing something. The treatment for these viruses is basically the same so....
 
Judee

Judee

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heapsreal said:
So I'm putting valcyte on the back burner for now but continue with famvir. The other reason valcyte is on the back burner is cost, generic from online pharmacy is $7 per pill.
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I don't know if this would help but I noticed yesterday that he says he treats "globally." Would you be able to get the medicine cheaper in your own country if you had a prescription? I mean would your insurance cover it? Mine won't and it sounds like you would still need to be working in conjunction with your own doctor.

And maybe even so with his fees, it would end up costing you the same in the long run as just buying online. idk. :(

https://www.drdantini.com/treatment/treatment-process/

Anyway, just thought I'd mention it in case it could help.
 
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heapsreal

heapsreal

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Judee said:
I don't know if this would help but I noticed yesterday that he says he treats "globally." Would you be able to get the medicine cheaper in your own country if you had a prescription? I mean would your insurance cover it? Mine won't and it sounds like you would still need to be working in conjunction with your own doctor.

And maybe even so with his fees, it would end up costing you the same in the long run as just buying online. idk. :(

https://www.drdantini.com/treatment/treatment-process/

Anyway, just thought I'd mention it in case it could help.
Click to expand...

I'd have to look into it. I think because it's indications are for a narrow group of people here, I think it would only be available through a hospital pharmacy prescribed by a hospital Dr. Plus it would be off label. Thanks it's worth looking into the cost etc

The health care system here is getting worse. Recently they were talking about making paracetamol a prescription item here 😥
 
Judee

Judee

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cheeseater said:
Going by memory, the amino acid L-lysine has about a 30% success rate for combatting herpes.
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Thank you. This post helped me because then I looked up HHV6 and l-lysine and found these two studies:
https://pubmed.ncbi.nlm.nih.gov/33326128/
https://pubmed.ncbi.nlm.nih.gov/16384760/
I have that pityriasis rosea they mention. A doctor diagnosed me with it on my back. I think it reoccurs often (or maybe never goes away really).

Pityriasis rosea is supposed to be most associated with HHV6/HHV7.

I ordered some Famvir and was getting bummed thinking it wouldn't help the HHV6 but those studies say Acyclovir cleared the pityriasis rosea faster than placebo making me think Famvir might help too. :)

I have tried lysine by itself before...not in those doses but reacted to it...I think because I need arginine for my heart.

Can high dose lysine be taken still concurrently with arginine, do you know, though maybe spaced apart in the day? If so, I may try it again with the Famvir when it comes or maybe even before then.

I use this product and it has both and sometimes I have had it cause me to wake ever so slightly refreshed. It only lasts for about 20 minutes but it's nice.
It has both the arginine and the lysine. I think it also helps me by lowering my ammonia levels which I think are high in people with ME/CFS. https://www.swansonvitamins.com/p/swanson-condition-specific-formulas-ghr-essentials-120-caps

Wikipedia also talks about high ammonia in the sleep inversion post on their site. https://en.wikipedia.org/wiki/Sleep_inversion (off topic but I thought I would mention it).
 
godlovesatrier

godlovesatrier

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Famvir might work but it's not supposed to work. We only had one poster on this forum who said their hhv-6 titers went down on famvir. But it could be a coincidence. Don't believe anyone else ever said it helped.

Lysine has never been proven in Vivo just so you know.

Valcyte is the better option. Or imunovir that would work for all herpes and rna viruses. Equilibrant would likely work as well even though there's very few studies I'd be surprised if it didn't.
 
R

rubix

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Sort of off topic, but I think this is the only primary EBV thread:

I was wondering if there's any reason to think a splenectomy would help in any way with Chronic EBV? My understanding is that EBV attacks the spleen, and maybe even mostly resides in the spleen. My spleen has been enlarged for a long time now because of EBV (it's a common symptom, not sure how many of you can relate), but it's not causing me pain all the time, it's just uncomfortable and especially to sleep on. I recall reading of a young boy who's health greatly improved after a Splenectomy, and somehow they surmized, I guess through a biopsy, that the boys spleen was riddled with EBV. But, removing the spleen is no small task, and could lead to further complications. However, if I could convince my doctor to approve the surgery and it was covered by inusrance, I would get a splenectomy tomorrow.

But I can't really find anything that would suggest removing one's spleen would somehow get rid of EBV or reduce it, it may just continue to replicate and thrive in the body and continue to cause miserable fatigue, but I'm desperate and willing to try anything at this point, as crazy as it sounds! And it does sound pretty crazy. Getting a splenectomy just due to the discomfort of having an enlarged spleen is something to consider on it's own (the size of my spleen changes by a few cm here and there, was measured at 14 cm most recently) but I should read up more on all the risks involved. I've been feeling miserable for so long and am only getting worse as time goes on. Any thoughts on the matter would be greatly appreciated!
 
Forummember9922

Forummember9922

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Judee

Judee

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godlovesatrier said:
Lysine has never been proven in Vivo just so you know.
Click to expand...

https://pubmed.ncbi.nlm.nih.gov/7555612/

Just found that but too brain fogged right now to understand it all. It seems to be saying a combo of lysine/arginine can increase some kinds of neutrophils.

I never did well on lysine alone so maybe combining them is key. ???

I think my heart needs the arginine too. My Swanson GHR supplement has both and seems to make me feel a little better.

Edit: oops just noticed @Forummember9922 also mentioned arginine. I'll have to catch up on this thread.
 
linusbert

linusbert

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Forummember9922 said:
Here perhaps using arginine to get ebv to come out of its hiding to make it more targetable (when antiviral agents are also given).
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i dont know if this is how it works.
you describe it like a lion hiding in the bush needing to be drawn out to be killed. but the virus isnt "hiding" and coming out... its embedded into cell dna and with certain conditions will be expressed to be build. - thats at least how i believe it works.
 
Judee

Judee

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Tammy said:
I thought arginine actually helped with the proliferation of viruses?????????.
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I had heard that too but I seem to be okay with it in a formula that has both arginine and lysine. I had also recently read someone, I think, on the Ray Peat forum(??) disputing that belief and saying that the original study was flawed somehow. IDK. I can't remember what I read that well right now so I may be confused. Sorry.

I don't seem to feel worse on my GHR formula though. It can actually cause me to wake up slightly refreshed some mornings if I took it the night before. :)

It only seems to last for about 20 minutes after I wake though. :meh:
 
C

Charles555nc

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heapsreal said:
I'd have to look into it. I think because it's indications are for a narrow group of people here, I think it would only be available through a hospital pharmacy prescribed by a hospital Dr. Plus it would be off label. Thanks it's worth looking into the cost etc

The health care system here is getting worse. Recently they were talking about making paracetamol a prescription item here 😥
Click to expand...
Directed to you in particular and others here...anyone find an online source for Brincidofovir (Tembexa). Or tried it personally? if so, what were the results?

Famvir cured my night sweats 10+ years ago, and I did a much higher dose per day re-trial a year ago and had increased energy and libido for a several weeks after I stopped.
 
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heapsreal

heapsreal

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Charles555nc said:
Famvir cured my night sweats 10+ years ago, and I did a much higher dose per day re-trial a year ago and had increased energy and libido for a several weeks after I stopped.
Click to expand...

Any reason why you don't stay on a regular dose of famvir?
I've been on 500mg twice a day for a long time now. A few hiccups with supply issues when covid started, which caused a back slide and took awhile to get back on top of it again.
 
C

Charles555nc

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heapsreal said:
Any reason why you don't stay on a regular dose of famvir?
I've been on 500mg twice a day for a long time now. A few hiccups with supply issues when covid started, which caused a back slide and took awhile to get back on top of it again.
Click to expand...
expense mostly, and the benefits are at the higher doses and the benefits dont last.

Nevermind lol. "

Male Infertility​


Based on testicular toxicity in animal studies, TEMBEXA may irreversibly impair fertility in individuals of reproductive potential [see Use In Specific Populations and Nonclinical Toxicology]. "

SO, any antivirals other than the basic ones, you would recemmend for chronic fatigue or enteroviruses?
 
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heapsreal

heapsreal

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Charles555nc said:
expense mostly, and the benefits are at the higher doses and the benefits dont last.

Nevermind lol. "

Male Infertility​


Based on testicular toxicity in animal studies, TEMBEXA may irreversibly impair fertility in individuals of reproductive potential [see Use In Specific Populations and Nonclinical Toxicology]. "

SO, any antivirals other than the basic ones, you would recemmend for chronic fatigue or enteroviruses?
Click to expand...

If you can find a good priced source of immunovir/isoprinosine to increase nk function or cycloferon which can do the same.
https://cosmicnootropic.com/products/cycloferon/
I don't know their effects on fertility though??
 
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