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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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antivirals

  1. Zebra

    Stanford CFS Clinic: what's it like in 2022?

    Hi, Comrades! I've been a patient at the Stanford CFS Clinic for a few years now, and I've seen it go through many changes, both in healthcare providers on staff as well as treatment approaches. It's been over a year since my last routine follow up appointment, and to manage my anxiety...
    • Zebra
    • Thread
    • abilify antivirals cfs/me dr bonilla low dose naltrexone stanford stanford protocol
    • Replies: 10
    • Forum: ME/CFS Doctors
  2. Pyrrhus

    Which drugs are effective against herpesviruses HSV, EBV, CMV, VZV, HHV6, HHV8?

    Which drugs are effective against herpesviruses HSV, EBV, CMV, VZV, HHV6, HHV8? This thread is intended to collect information from other threads regarding which drugs are effective against the various common herpesviruses: Herpes Simplex Virus (HSV) Epstein-Barr Virus (EBV) (also known as...
  3. I

    Valcyte - is it available anywhere in UK?

    I have CMV (extremely high titers) and i've been trying my best to treat it with antiviral herbs and immune modulators for the past two years with no improvement. I know its time to try Valcyte, so I am looking for help in finding a Dr in the UK that uses it to treat CMV. Does anyone have any...
  4. Hip

    The reason why antivirals like Valtrex and Valcyte take such a long time to work in ME/CFS (or don't work at all), according to Dr Martin Lerner

    When treating herpesvirus-associated ME/CFS with antivirals such as Valtrex and Valcyte, Dr Lerner's studies showed it takes a long time for benefits to appear, usually 3 or 4 months for the very first signs of improvements to materialize, and a year or more for the full benefits to manifest...
  5. P

    Role of EZH2 in ME/ CFS and POTS

    Hi, I have been a silent reader of this forum for many years. During the past couple of months, I often had to think about a study from Australia. There, it is said, that POTS (at least in a subgroup) is caused by an epigenetic malfunction of the NE-Transporter. This epigenetic malfunction can...
  6. PallasKat

    Side effects from Famciclovir ?

    Hello Everyone~ I haven't posted for a LONG TIME. I recently started on Famciclovir after finding out I that I have high levels of EBV. I have had ME/CFS/Fibro for approximately 10 years. I am taking 500 mg daily, it's been about 3 weeks. I am having trouble figuring out if these are actual...
  7. J

    Article/Study: „Knocking out 1 protein may cure the common cold“

    Article: „Knocking out 1 protein may cure the common cold“ https://www.futurity.org/common-cold-viruses-2162532-2/ Study: Enterovirus pathogenesis requires the host methyltransferase SETD3, Nature Microbiology, Page 2058-5276, https://doi.org/10.1038/s41564-019-0551-1
  8. M

    Anyone experience worsening of symptoms after staring acyclovir?

    I just started taking acyclovir a few days ago, now been on it for 4 days. I have had a severe worsening of symptoms. Probably the worst I have felt since getting ill. Does anyone else have experience with this? Could this be due to the acyclovir? Is it some sort of die off reaction?
  9. M

    Idaho doctor recs? (or just anywhere close by)

    Anyone else here from Idaho or have any Idaho doctor recommendations? I am seeing a functional medicine doctor who is great (just stated helminthic therapy with her), but she has not recommend any things else besides diet, supplement, lifestyle changes etc. Also unfortunately naturopaths cannot...