Hi,
I do not post on here very much, but I have posted about GcMAF and dosages for autism and M.E.. (My 6 y/o has autism, Crohn's like disease, Hashimoto's, CFD, and apraxia of speech.)
I am wondering if we could take a count of how many of you, who have M.E., have improved on the concentrated form of GcMAF that you order straight from the UK, Netherlands, or Japanese labs?
My son is doing EXTREMELY well on the GcMAF that we get through Dr. Jeff Bradstreet. His supplier is the UK lab. In Dr. Bradstreet's practice, he has found that CFID/ME patients and autism patients cannot tolerate the highly concentrated GcMAF that you buy directly from these labs. I learned this the hard way.
I ordered from the UK lab over the summer. The shipping time is not dependable since it is coming from overseas. If the GcMAF comes to you warm or hot, it will still have potency. I did about 5 injections of the UK GcMAF with my son. He did have significant immune responses after the injections, but his autism did not improve in ANY way. He could not tell me about any pain that he was experiencing, but I know that he had a very severe headache at one point, b/c he wanted me to push my hands on his head (i.e. apply pressure). He spent at least 1-2 nights screaming in pain while I was doing the concentrated form of the GcMAF.
After the above experience, I phoned Dr. Bradstreet's office. We started weekly diluted injections on Sept. 1st of this year. I know, from Dr. Bradstreet, that he receives the GcMAF from the UK in roughly 24 hours. It is 46 degrees F when it arrives in the states. (It is supposed to stay at 44 degrees to stay the most potent.)
After 4 weeks (4 injections), my son's hyperactivity was WAY down. He could slow down, concentrate, and listen to what I was asking him to do. He could follow directions. He could obey me. After 8 weeks (8 injections), his Crohn's-like disease started to resolve. (He started having really, really bad, stinky diarrhea at age 10 months. Up until the GcMAF with Bradstreet, he had diarrhea, 2-5 times per day, every day. The only exception was when he was on a 2 month course of Prednisalone.) Now, my son is saying a few 4 word sentences and has spontaneous speech on a regular basis. (I know you do not know what his baseline was.)
Per my "sources", the GcMAF from the UK provides the best, most reliable results with CFID/ME and autism. The lab in the Netherlands is 2nd best, and the lab in Japan is not good. This is NOT MY OPINION; it is the opinion of an MD who uses GcMAF in his practice.
Also, my son had a gluten "infraction" after having not eaten gluten since February of 2009. He ate a little bit of Playdoh, which has gluten in it, on Thanksgiving Day (U.S.). His awful diarrhea came back with a vengence......very, very depressing. Exactly 2 two weeks after the infraction, and after 2 GcMAF shots, the diarrhea started to clear up again.
Bradstreet just posted a GcMAF study on his blog about autism, GcMAF, and Nagalase levels, in case any of you are interested. I think it is safest to go with an MD who purchases the concentrated GcMAF from one of the labs, dilutes it, and then sends the shots to you. Kids who have autism are recovering with GcMAF. I hope it is helping the CFID/ME community as well. (My sons' Nagalase level is 1.4.)
Madison
http://drbradstreet.org/ (link to Bradstreet's site and recent study)
you would need to take it to a compounding pharmacy to lower the dose enough to be tolerable. And, the dose they supply could be anywhere from 1500 - 2500 ng--and they can't tell you how much you would be getting.
