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Vaccine-triggered CFS linked to nasopharynx inflammation, and 81% cured or improved by treating this nasopharyngitis

Hip

Senior Member
Messages
17,873
Okay, I didn't think of this yesterday but for people who want to try this there is an easier way to get the solution at least partially on the nasopharynx region. It's pretty easy--you just swallow the solution while looking at the ceiling. (Of course make sure it is a solution that can be swallowed.)

That might work, but note that in one paper, Dr Hotta suggests the mechanism of action of epipharyngeal abrasive therapy (EAT) may involve a combination of the anti-inflammatory effects of zinc chloride solution, plus a mechanical abrasion from prodding the cotton swab into the nasopharynx, which promotes blood flow and local bleeding to clean out the nasopharynx.

So the mildly abrasive effect of the cotton swab prodded into the nasopharynx might also be important.
 

godlovesatrier

Senior Member
Messages
2,554
Location
United Kingdom
Interesting thread this. I've had a sore throat now from ebv infection for 7 weeks. It had started to go but putting the heating on has brought it back. Mindue it comes back with exertion as well.

As for the oral probiotic which I think someone here recommended I've been taking that for about the same amount of time and it definitely had and effect. Although try finding a pro biotic with k12 it's actually impossible. I struggled to find anything. So I took life extensions oral pro biotic instead. Whilst this does work well to quell a feeling of bacteria in the mouth and reduced white tongue a lot. It doesnt stop the ulcers I get in my mouth when my immune system is busy.

However my doctor prescribed daktarin oral gel to prevent another bacterial throat infection and to prevent thrush and what do you know it prevents and treats the chronic ulcer! I say chronic it heals over for weeks at a time but comes back badly when I'm unwell. At ant rate the daktarin has treated it.

As for the zinc chloride I might try this q tip. I have post nasal drip some of the time and sneezing a lot (allergies to dust I think) combined with sore throat. However those are really my only symptoms. But worth a shot.
 

Swim15

Senior Member
Messages
369
I’d bet this would also be a really good application for ozone. I’ve done some nasal insufflations with profound results for allergies and sinusitis type symptoms
 

lenora

Senior Member
Messages
4,926
Hello All....I may be somewhat late in following all of this, but does anyone have chronic sinus problems and a smell of vinegar? I had a pituitary tumor probably 34 years ago and bromocriptine (medication) was used to control it. I wonder if this could explain the hirsutism in the original letter from the woman in England whose daughter had ME/CFS.

I agree that I've never heard of anyone having symptoms show up mos. later, so perhaps the injection plus another (or other) viruses are implicated. Sad story, though. With the hirsutism, I would also suspect an endocrinological problem and would see a doctor specializing in that (hard as it may be). It's highly possibly that she has more than one condition going on...as I feel that most of us do.

By the way, my pituitary tumor did go, but I have a lot of chronic problems that come and go. The smell of vinegar is often present, yet my husband doesn't smell it at all. Any updates on this inflammation would be appreciated. Yours, Lenora.
 
Messages
74
Location
Toronto, ON
The smell of vinegar is often present, yet my husband doesn't smell it at all.
Sounds like a yeast or fungus as those microbes are well documented for making vinegar among other metabolites.

I was treated with nasal antifungals and benefited from losing odours that others couldn't detect. I recommend someone familiar with the work of Dr Neil Nathan or Dr. Ritchie Shoemaker. Many physicians are unaware how common the growths of molds and yeast in the body are, nor the downstream issues they may cause.
 

lenora

Senior Member
Messages
4,926
Hello @MastBCrazy. Cute name. Thanks for your input. So I'm not crazy, then? Good to know and I'll bring it up with my neurologist (who is very open to reasons for things, etc.). I've made note of the two doctors you mentioned & will read up on their input.
 

lenora

Senior Member
Messages
4,926
@Mrparadise ....Hello. I recall that I asked my ENT about deviated septums causing problems quite a few years ago. As I recall, he said that a majority of the population has this problem. Righto! I was put on two rounds of antibiotics and still had the problem.

I do think it's easier for us to form infections, but sometimes it's hard to know if a certain med is causing it, migraines or even allergies. An old med that began at the time of CFS/ME and continues to be used today is guafenesin, which can be bought rather inexpensively OTC. It liquifies all secretions and makes us suffer less from the overall problem. It does just treat the symptoms without curing it.

I was quite surprised to see it mentioned as a modern treatment even today. In my case, I think an infection is present or, heaven forbid, migraines. Right now I'm using guafenesin and it's helping. Yours, Lenora.
 
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hapl808

Senior Member
Messages
2,116
Interesting. Has anyone on PR received the treatments Dr Hotta has described? Seems relatively simple and promising in theory, but I would expect to hear some positive reports if it were that helpful.

Especially for people who had ENT surgeries that somewhat correlated with the beginning of ME/CFS type symptoms.
 

godlovesatrier

Senior Member
Messages
2,554
Location
United Kingdom
Nice one hip. Saw this but could not rember this thread.

Can't believe all of these treatments are reappearing now for LC. It's nuts. It's also giving us a slightly more specific argument as to why they might be working.

I recently bought that Oxford probiotic. If it's been manufactured properly it might actually work better than commercial probiotics which are often garbage.

Anyway back on topic. Wonder if this works well in lots of patients. I need to re read this whole thread later on
 
Messages
27
@Hip

I was referred to ENT late 2019 who (without examining me) told me “stop focusing on these obscure little syndromes”. He spoke to me for probably 30 seconds, didn’t even sit down. NHS!

So on I go alone..
trying to figure out how to mix the Zinc Chloride https://amzn.eu/4iMP9x0
^ can you / someone look at this product and tell me how I’d get to 0.5%?
it says 10 drops = 10mg zinc..
My brain doesn’t work in a way that can figure that out 🥺
 

Hip

Senior Member
Messages
17,873
@Hip

I was referred to ENT late 2019 who (without examining me) told me “stop focusing on these obscure little syndromes”. He spoke to me for probably 30 seconds, didn’t even sit down. NHS!

So on I go alone..
trying to figure out how to mix the Zinc Chloride https://amzn.eu/4iMP9x0
^ can you / someone look at this product and tell me how I’d get to 0.5%?
it says 10 drops = 10mg zinc..
My brain doesn’t work in a way that can figure that out 🥺

By my calculation, if you place one 10 mg dose (10 drops) of that product into 4 ml of water (about a teaspoon of water), that will give you a 0.5% solution of zinc chloride.

Or equivalently, you could place 50 drops into 20 ml of water to get a 0.5% solution.



Calculation:

That product states it provides 10 mg of zinc (as zinc chloride) per dose of 10 drops.

Zinc chloride is roughly 50% zinc, so that means one dose contains about 20 mg zinc chloride.

So if you place 1 dose of the product in 4 ml of water, that will give you a 0.5% solution of zinc chloride, since 4 grams x 0.5% = 0.02 grams = 20.
 

Hip

Senior Member
Messages
17,873
Are you going to apply the zinc chloride with an extra long cotton swab, @brando? Note that spraying zinc into the nose can cause a permanent loss of sense of smell (discussed earlier).
 
Messages
27
Are you going to apply the zinc chloride with an extra long cotton swab, @brando? Note that spraying zinc into the nose can cause a permanent loss of sense of smell (discussed earlier).
That’s the plan, thank you for the info!

I have looked over my medical records from when I got EBV 16 years ago, and my first complaints was fatigue as post nasal drip — so I’m hoping I’ve found the start of the cascade 🤞
I’ll keep the forum in the loop
 

lenora

Senior Member
Messages
4,926
That's pretty awful to have a Dr. respond in that matter. True, he's not a chemist (if zinc chloride was your specific question) and a lot of doctors really don't like pulling out their huge PDR and figuring meds out, that was way out of line. I hope you've since found someone....well, I guess you have in @Hip.

I had a great neurologist (now deceased) and his mind was the world. Even with him, I'd leave the question and he'd call me with an answer within a week. Like you, I'd done some figuring beforehand (depends on the brain fog) but he was old school which isn't to put down today's younger physicians. Some are absolutely excellent. Basically, it all comes down to personality and yes, I'd say the majority of us have encountered the type of physician you're describing.

It's a waste of time and effort, I know. Still, we need that elusive diagnosis and we are often left to figure things out ourselves. So many of our bodies are different, just like our symptoms. I can only hope he wasn't a "specialist" in this illness. Wishing you better luck next time. Yours, Lenora
 

Hip

Senior Member
Messages
17,873
That’s the plan, thank you for the info!

From Dr Hotta's perspective, he only diagnoses nasopharynx inflammation and provides the zinc treatment if when rubbing the swab on the nasopharynx, some blood is seen on the swab. If there is no blood, then I suspect this treatment may not offer benefits.
 

Cipher

Administrator
Messages
872
A new video on the topic is available on YouTube; Japanese Treatment EAT for Long COVID - Medical Frontiers

Here's screenshot of the effects in long COVID patients:

1693741664422.png


All evaluated long COVID patients were found to have epipharyngitis.
 
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