UK: Jen Brea wants eyecatching stats re UK ME prevalence, diagnosis, research, treatment

[Sasha]

Looks like Jen with her Canary in a Coalmine documentary (can't wait!) is going to be mentioning the UK.

She just posted on FB:

https://www.facebook.com/canaryfilm/posts/438195219651550

Wanted: punchy, appalling, colorful, moving stats re: prevalence of ME in the UK, its diagnosis, research or treatment.

For example, over here we often say that there's more funding for male pattern baldness or allergies than for ME (not even mentioning the research definition issues). Are there similarly surprising stats that might help illustrate the situation in the UK?

I've got no reason to think that she reads Phoenix Rising or will see this thread so please post your responses on FB or presumably it's OK to use her main website contacts page:

http://www.canaryinacoalminefilm.com/#!contact/c24vq

 

[Countrygirl]

When reading the above, I ask what diagnosis,research and treatment????

We are mis-diagnosed, mis-treated and no funding has been given for medical research over the decades in the UK.

 

[Leopardtail]

When reading the above, I ask what diagnosis,research and treatment????

We are mis-diagnosed, mis-treated and no funding has been given for medical research over the decades in the UK.

well, given yes, but mostly to Psychiatry