They found something growing in the lungs

[Marylib]

You are completely right. Eventually going to have to let time do it's thing. My biggest concern is I might have to move out soon as my home life is not helping my situation at all. I have some options though because of my sickness.
Hmm interesting . My heart palpitations and racing heart might be from copd which intern causes atrial pre mature beats which my heart test said where the cause. The sensitivity to chemicals though remains a mistery though.

Sorry to hear of your troubles regarding your home life @HABS93. You are not alone in this. Sending a virtual hug.

 

[HABS93]

Sorry to hear of your troubles regarding your home life @HABS93. You are not alone in this. Sending a virtual hug.

I'm very good at surviving . Found a place for not too bad and getting on disabilities! The real healing is about to begin. My doctor also thinks this new drug that sarcoidosis fatigue patients have been using has been extremely useful in full recoveries . I'm excited to try it it's only specifically for my case. Things are starting to look up. I'm able to walk six hours now the legs are getting strong again

 

[Mary]

I'm very good at surviving . Found a place for not too bad and getting on disabilities! The real healing is about to begin. My doctor also thinks this new drug that sarcoidosis fatigue patients have been using has been extremely useful in full recoveries . I'm excited to try it it's only specifically for my case. Things are starting to look up. I'm able to walk six hours now the legs are getting strong again

Wow - I'm so glad to hear all this! Yes, you are good at surviving! And walking 6 hours is truly amazing!!! Thank you for keeping us posted --

 

[Jyoti]

So, so happy to hear this @HABS93 ! Absolutely the best news of the day here.

 

[Marylib]

That's great @HABS93. Very happy things are looking up for you.

 

[Jyoti]

Hey @HABS93 --thinking of you yesterday and wondering how things are going. It has been a couple of weeks but you are not forgotten. Hope the progress continues and you have great holidays, whichever ones you like!

 

[Zebra]

Hi, @HABS93

I hope you won't mind revisiting this thread. It's amazing where you are now, compared to 2019!

Would you be willing to let me know what, exactly, you had biopsied to confirm the diagnosis of sarcoid?

Lung nodule?
Lung tissue?
Hilar lymph node?
Enlarged lymph node?
Something else?

Thanks in advance for any information you are willing to share.

Hope you are doing ok!

Warmly,
Z

 

[YippeeKi YOW !!]

@Zebra
You've asked the exact question that's been troubling me, given my general trust for Drs and their thoroughness and concern for their patients ....

Hope you're still doing well @HABS93

 

[Zebra]

Hi, @YippeeKi YOW !! and @HABS93

I want to be clear that I am not second-guessing HABS's biopsy-proven diagnosis of pulmonary sarcoidosis.

I was/am asking about HABS's biopsy experience to inform my own thinking and decision-making about a biopsy option that was presented to me yesterday.

I was actually hesitant to ask you, @HABS93 about revisiting this time in your life, but I know you are supportive of me, so I thought I'd try reaching out. Hope to hear from you the next time you are on PR. Thanks!