With reference to ME patients not having an open mind I do not believe that to be true. If one looks at the desperate measures that some ME sufferers have gone to in order to regain some semblance of normal life, with financial implications that stretch beyond all rationale, it seems incongrous to juxtapose this with such a stance. If you ask any patient with ME what they would do to get better, i'd think you'd be surprised. The fact is that many have tried GET and CBT and it hasn't worked; for many GET has made them worse. Surely that has to be a cause of concern, especially when 'so little is known about the illness' ( I think Dr Nancy Klimas may disagree )
I've found GET to be of no use for myself, although I did not find it to be as severely damaging as some of the people here have reported. I'm certainly not pro-GET and CBT. I'm not doing them because I don't think it's likely they'll help me.
From my understanding of your post, I don't think we really disagree about anything significant.