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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Ross,
That's wonderful news that you're feeling better. I hope you just continue to improve.
hvs, you said you haven't had any bad effects. Any improvement for you?
I just had the one treatment so far, Jody. The day after I received it I happened to feel better than I had for a few weeks (characterized by greater ability too endure being upright), but there's no way I can attribute that to the Vistide.
It's great to hear your good news, Ross!
You will probably feel better for a few days after because of the fluids, not the Vistide. I always feel fantastic the first 2 days after the fluids. The same is true for the Amino Acids......did he put you on the IV Amino Acids as well?
I have my first appointment with Peterson next week, and I just wanted to check: is he still pretty much pushing ampligen and now vistide, the combination depending on the patient?? As in, does he believe CFS is strictly a viral & immuno-dysfunction disease?
best,
joey
Very well put hvs.....I was gonna say that if one is fortunate enough to even be accepted into his practice, then if for no other reason, go and at least do the diagnostics. If one doesn't agree with his treatment recommendation after that, at least you will have the best possible diagnostic work up done. He is an amazing diagnostician. He goes both barrels after the diagnosis leaving no stone unturned. He did more diagnostic work for me in 3 days than 15 doctors did in 15 years.