Hip
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In the COVID-19 Longhauler Advocacy Project Facebook group, I posted a poll asking members of that group which subtype of long COVID they most identify with.
Long COVID subtypes include: post-viral fatigue (similar or the same as ME/CFS), heart and/or lung damage (which may be permanent) and dysautonomia (POTS, NMH or temperature intolerance).
Below are the six main poll answer options, and the red and green figures show the percentage of long COVID patients who answered each of these options:
As you can see from the above poll results, a total of 65% of long COVID patients in this poll most identify with having the post-viral fatigue subtype of long COVID, which is the type similar or identical to ME/CFS.
And so far, it seems most of these ME/CFS long COVID people are not getting much better.
Dysautonomia was the next most common subtype, with a total of 23% reporting they most identify with dysautonomia.
It is possible the results of this Facebook group poll are skewed because there may be more post-viral fatigue long COVID patients hanging out in this FB group (perhaps because the post-viral fatigue subtype is the more concerning or debilitating).
Also, one difficulty with this poll is that long COVID patients may suffer from more than one subtype. In the poll, the following instructions were provided:
If you are a member of the COVID-19 Longhauler Advocacy Project FB group, the poll can be found here.
Long COVID subtypes include: post-viral fatigue (similar or the same as ME/CFS), heart and/or lung damage (which may be permanent) and dysautonomia (POTS, NMH or temperature intolerance).
Below are the six main poll answer options, and the red and green figures show the percentage of long COVID patients who answered each of these options:
• I have post-viral fatigue, and it has not got much better over time — 50%
• I have post-viral fatigue, and over time it improved by at least 50% — 15%
• I have heart and/or lung damage, and it has not got much better over time — 4%
• I have heart and/or lung damage, and over time it improved by at least 50% — 8%
• I have dysautonomia, and it has not got much better over time — 22%
• I have dysautonomia, and over time it improved by at least 50% — 1%
As you can see from the above poll results, a total of 65% of long COVID patients in this poll most identify with having the post-viral fatigue subtype of long COVID, which is the type similar or identical to ME/CFS.
And so far, it seems most of these ME/CFS long COVID people are not getting much better.
Dysautonomia was the next most common subtype, with a total of 23% reporting they most identify with dysautonomia.
It is possible the results of this Facebook group poll are skewed because there may be more post-viral fatigue long COVID patients hanging out in this FB group (perhaps because the post-viral fatigue subtype is the more concerning or debilitating).
Also, one difficulty with this poll is that long COVID patients may suffer from more than one subtype. In the poll, the following instructions were provided:
Some people may not be sure which sub-type they have, or may feel they suffer from more than one sub-type. In this case, just give you best guess as to which sub-type you have, and if you are suffering with more than one sub-type, just select the sub-type you feel is the more severe.
If you are a member of the COVID-19 Longhauler Advocacy Project FB group, the poll can be found here.
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