Jenny TipsforME
Senior Member
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I'm waiting for my 23andme results. I'm getting them done mainly to contribute to Nancy Klimas' call for genetic data crowdsourcing. It would obviously make sense to get some personal benefit too.
There's lots of info splattered around the forum about genetic testing but if you find reading difficult ME wise it is hard to sort through. I'm hoping that people could summarise some info here? Perhaps you could then point people to this thread when we keep asking the same questions!
My questions to people in the know such as @Valentijn @alicec @caledonia @Subcosmos @Flo @Sherpa @sregan are:
With 23andme data
1) which additional reports would you get done? Why?
2) which give you the best control over seeing info useful for now and avoiding scary future stuff?
3) what is worth checking if you have ME?
4) what is worth looking for comorbidity wise eg Ehlers-danlos?
5) what do people panic unnecessarily about?
6) which report is on the money supplements advice wise?
I want to get as much info as possible without ending up spending years worrying about potential diseases. On 23andme I won't open the Parkinsonism or Alzheimers info, but in other areas I think I want more information than they provide.
I've seen Gene Genie recommended here is that http://geneticgenie.org?
Promethease has also been recommended but when I ran their example test the 1st result was increased Parkinsonism risk which is precisely what I don't want to know. Someone else's screen printing seemed to show you can pick good and bad news. Initially I thought I could just pick good news but then realised you can probably infer the bad news by what's missing!
I've also seen people recommend http://www.omim.org to interpret the meaning of results
I want to make some decisions and get informed beforehand to avoid heartsinking moments over results that don't mean much. I'm doing this MOOC course on genetics and personalised medicine to get a better understanding https://www.coursera.org/learn/personalizedmed/home/info
Thanks for your help.
There's lots of info splattered around the forum about genetic testing but if you find reading difficult ME wise it is hard to sort through. I'm hoping that people could summarise some info here? Perhaps you could then point people to this thread when we keep asking the same questions!
My questions to people in the know such as @Valentijn @alicec @caledonia @Subcosmos @Flo @Sherpa @sregan are:
With 23andme data
1) which additional reports would you get done? Why?
2) which give you the best control over seeing info useful for now and avoiding scary future stuff?
3) what is worth checking if you have ME?
4) what is worth looking for comorbidity wise eg Ehlers-danlos?
5) what do people panic unnecessarily about?
6) which report is on the money supplements advice wise?
I want to get as much info as possible without ending up spending years worrying about potential diseases. On 23andme I won't open the Parkinsonism or Alzheimers info, but in other areas I think I want more information than they provide.
I've seen Gene Genie recommended here is that http://geneticgenie.org?
Promethease has also been recommended but when I ran their example test the 1st result was increased Parkinsonism risk which is precisely what I don't want to know. Someone else's screen printing seemed to show you can pick good and bad news. Initially I thought I could just pick good news but then realised you can probably infer the bad news by what's missing!
I've also seen people recommend http://www.omim.org to interpret the meaning of results
I want to make some decisions and get informed beforehand to avoid heartsinking moments over results that don't mean much. I'm doing this MOOC course on genetics and personalised medicine to get a better understanding https://www.coursera.org/learn/personalizedmed/home/info
Thanks for your help.
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