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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Is that an angle to look at if there is an excess of collagen in the body and so we feel bad when we eat anything that increases it?
@Wonkmonk Going outside of diet, are you a big "stress" or "anxiety" person? I ask cause I have been diagonised high functioning autistic with severe anxiety (of public speaking). Though I cant connect the dots precisely, I have a strong feeling that mental problems play a big part in digestive issues.
Interestingly, I just found this on salicylate intolerance (didn't know that even existed).
Several of the foods I think I am intolerant to do contain salicylates (e.g., berries). Some of the symptoms mentioned here are also present.
Could CFS, for some people including me, be mainly an undiscovered food intolerance.
Could CFS, for some people including me, be mainly an undiscovered food intolerance. Or at least exacerbated massively by intolerance to some foods?
It's frustrating because it feels like we're in the dark and not sure if we're pulling levers or pushing buttons and if any of the instruments are connected to anything or not.
I can eat blueberries with breakfast for a day or two, but after that, even small additional amounts immediately make me worse.
There might also be a biological delay involved. A chemical might make cells grow abnormally, but it won't have an effect until enough cells have gone through the replacement process.