Hey you guys!
My name is Tia here, and I've been sick since birth. I am now 32 years old and on disability leave. Have fought like hell to be able to study and work because there are SO many things I'd like to do in life but can't because of the ME. I'd like to travel and go dancing and start swimming and such but being tired all the time stops me. I feel so alone in this condition, I don't know anyone with it in this country, so this forum with you guys, sitting here and reading about your troubles with ME, that we are all in the same boat toghether, is a huge comfort to me and I'm so grateful for it. Just the thought of that there are more like me out there is a big comfort.
What I'd like to know is if there are anymore like me, who were born with this condition? I've been extremely tired since birth, (the doctors thought I was stillborn at first since they slapped me on the behind but couldn't make me scream, I just fell asleep although they held me upside down) and no doctor have been able to figure out what was wrong with me until a friend of mine showed me Chronic Fatigue Syndrom. At first I thought it was to be just another thing that didn't fit in the decription of how I felt, but I read it anyway and was stunned as I read along, everything matched! So I told my doctor and got the diagnosis. Then I heard about the XMRV and a possible cure.. That the WPI is working on translating a cancermedication for us that will be out on the market in a couple of years.. That sounds GREAT! I can only imagine what it feels like to be healthy and rid of this obsticle.
Since I was born with ME I don't know what it's like to be healthy and I wonder what it must be like for all of you who have been healthy and then suddenly got sick. It must be hell! You're all in my prayers.
Anyway that was my presentation, just wanted to introduce myself and I hope all of us can see the light in the end of the tunnel SOON!
And to Jimbob: There is a cure coming that they're working on, so in moment of despair remember that it's on the way. Might help alittle.