Seeing Dr John Chia on Friday, What Questions Should I Ask?

[bobbyD]

thanks for your input, I thought this CFS event in California might interest anyone..
https://www.omf.ngo/

Chronic Fatigue Syndrome Research Center at Stanford University
Second Annual Community Symposium on the Molecular Basis of ME/CFS
Sponsored by Open Medicine Foundation

 

[Wonkmonk]

I am thinking about a question for some time, it may also be interesting for @bobbyD if further testing is done for bacteria (I agree with @Hip that viruses don't appear elevated, although not all usual suspects were tested).

My question is: After a past infection, do bacterial antibody titers return to zero or will there be a (low) positive IgG titer remaining even after the infection has been cleared?

 

[bobbyD]

Thanks Wonkmonk,

can you be more specific about what type of testing?

Regards

 

[bobbyD]

Is this what you had in mind?
https://www.sciencedaily.com/releases/2017/04/170426092351.htm

 

[Wonkmonk]

Did you do all the testing recommended by Dr Lerner? i.e.

Borrelia burdorferi
Babesia microti
Anaplasma phagocytophilia
Mycoplasma pneumoniae
Streptococcal infection (antistreptolysin O)

Plus chlamydia pneumonia is often mentioned.

When viruses aren't suspicious, it makes sense to turn to bacteria.

 

[Wonkmonk]

The list can be found here, p.29:

http://treatmentcenterforcfs.com/documents/Dr.AMLerner-PrimeronMECFS.pdf

Sorry if it came up already, didn't read all the 17 pages

 

[bobbyD]

Thanks very much for this info, have you come across a good list of CFS doctors in the LA area?

 

[Wonkmonk]

Sorry, I'm not from the US, but I think there are members from the West Coast on this board who might know. I think @Learner1 and @Gingergrrl are if I'm not mistaken, right?

 

[Gingergrrl]

Sorry, I'm not from the US, but I think there are members from the West Coast on this board who might know. I think @Learner1 and @Gingergrrl are if I'm not mistaken, right?

I am on on the west coast (LA) and there is not a list of ME/CFS doctors in LA and to the best of my knowledge, Dr. Chia is the only one. He was not the right doctor in my case but I know he has helped many people. My doctor is 7 hrs north of me in No. CA. My MCAS (mast cell) specialist, however, is in LA about 45 min south of me.

 

[bobbyD]

To Wonkmonk,

thanks for Dr Lerner's doc, it's a little old at 2011, do you know of any updated finding by other Doctors?

 

[bobbyD]

what are the dr's names?

 

[bobbyD]

here is updated news on CFS from ... nature.com
https://www.nature.com/articles/d41586-017-08965-0

 

[Learner1]

The Center for Complex Diseases and the Stanford CFS Clinic are in the Bay Area. In LA, you might look for functional medicine doctors, like Dr. Holtorf.

I haven't been to him, but my functional medicine doctor up here in Seattle has used a similar approach to the attached which has helped significantly, along with traveling to the Bay Area for my specialist.

 

[JinZ]

One question you could ask Dr Chia if you don't mind is: Does oxymatrine only work for enterovirus-associated ME/CFS, or can oxymatrine also be used to treat ME/CFS associated with other viral infections, such as EBV, cytomegalovirus and HHV-6?

Sorry I'm reading through these threads but was this question answered? I'm in the other Viral infections patient.

 

[Hip]

Sorry I'm reading through these threads but was this question answered? I'm in the other Viral infections patient.

I have not seen an answer, but one of Dr Chia's patients on this forum might know.

 

[JinZ]

I have not seen an answer, but one of Dr Chia's patients on this forum might know.

Thank you if everything goes well hopefully I can ask him during December* when I see him.

 

[Dallase1]

I think is fairly certain that ribavirin and interferon do not work against CVB4, as in the Invest in ME London 2009 conference, in the video at timecode 41:30, Dr Chia says:


Then at timecode 42:30, Dr Chia says:


In this part of the video, Dr Chia is talking about treating his son and some other ME/CFS patients with ribavirin and interferon, and how their CVB3 antibody titers dropped after treatment, but the CVB4 antibody titers were unchanged after treatment.

So I think this question is already answered; but you may want to see what Dr Chia recommends for treating CVB4.





I am not sure how important a question this is. Oxymatrine may have a lowish 19% bioavailability, but that presumably is taken into account when setting the oxymatrine doses. If the bioavailability were to be increase, then the dose would have to be lowered.





I can tell you the answer the LDN part of this question: Dr Chia says that LDN only works for a very small subset of ME/CFS patients, but he notes that the patients LDN works for get major benefits from it.





I know that Dr Chia finds Equilibrant to be slightly stronger in effect than pure oxymatrine, and some patients find Equilibrant too strong, so he switches to oxymatrine only.

Do you know any other patients on the forum I could talk to about Oxymatrine? After substantial research, I have found the Alternative Medicine Solutions supplier to be very reputable and even obtained a sheet of the testing and purity standards of his product.

 

[Hip]

Do you know any other patients on the forum I could talk to about Oxymatrine?

You might want to search the forum for the words "oxymatrine" or "Equilibrant" to find out who has been taking it, and then contact those patients.

After substantial research, I have found the Alternative Medicine Solutions supplier to be very reputable and even obtained a sheet of the testing and purity standards of his product.

Yes, the Alternative Medicine Solutions oxymatrine seems to be a pure pharmaceutical quality product, as the capsules contain just a white powder which is oxymatrine. Whereas the White Tiger tablets look like they are the made from compressed Sophora root herbal powder.

 

[JinZ]

Let us know how it works out for you =) (to Dallase1). Not sure what happen to the quote part

 

[sometexan84]

You know, I really don't fully trust Dr. Chia

Just sayin!