Improved ME from 2 to 6
- Eastern NC USA
@gbells , hope this helps: when I am in a or about to start in a PEM crash or have a "bad day" (activity level 2), my energy level/body battery is 5%. On a "good day" (activity level 3-4 for me), my body battery is in the 30%'s. I have rarely seen anything past 50%. I
Thanks Snap. Your ME profile says you had ME since 2019 so in 2 years you're at 45% of normal energy production non-ME.
My HRV 'scores' were mostly in the 80s and 90s. I was floored, honestly. A couple of times I dipped down into the 60s, but that was the lowest reading I got. Now, I know that if you are super drained you can end up with a high HRV score, but this was consistent.
Jyoti, we're talking about the energy reading not the HRV score. Do you have something comparable on your app and can you convert it to a high and low for energy?
My body battery is pretty much at 5% no matter what I do and how much I rest. (*laughs*)
How long have you had ME Abrin?
With ME's mitochondral fragmentation disabling aerobic ATP energy generation we would expect the worst reading if you are ok with blood glucose to be 10% so 5% is too low. How long have you had ME? If it wasn't due to low blood sugar (low glucose, insulin resistance, chromium deficiency, diabetes) you may want to look into boosting some adult energy supplements to get that up (ubiquinol, L-carnosine, nicotinamide riboside, shalijit).
I just did another set of Welltory initial HRV energy readings in the seated position resting. Post feeding pre-apoptosis it was up to 61% but three hours after restarting the cell growth inhibitors I felt a big spoons energy drop due to taking cell growth inhibitors for apoptosis and redid it and it was down to 25% which means apoptosis used up 36% of my energy reserves and that at the start I am 51% recovered from ME. This closely matches my spoons estimation. Great app.
I think we can use HRV energy monitoring to objectively determine when someone has fully recovered. Great discovery. Excellent contribution @Mary.
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