Sorry about this long post.
I did not have any tick born bacteria or viruses. I quess one would have to be happy because some of those can be pretty nasty and because due to my chemical sensitivity they would be very hard to treat. But this also means that all the possible laboratory tests have now been tested and no other illnesses have been found. This sickness of mine is defenetly CFS. I knew it already. Should I be happy now....
It took only four weeks to get so much better. The sun has been shining most of the time when I have worked at the shipyard. At first it took seven days to get rif of that bad fatique and some other symptoms, after first trip to the shipyard. My working time at the beginning was 2 to 3 hours per working day + 2 x 55 minutes driving with my car. This week I have had only one to two resting days between working days and I have worked 5 hour per day + plus driving = 7 hour day. But I have not had enough rest. I recon, I would need three resting days and it would be better if I only worked for four hours.
I am wondering why the susnhine worked so fast this year. I did not have an opportunity to really spent time in the sunshine between March and Aprill. Only a few days. I did use my UVB equipment but only for seven times to find out my dosage and the first trials were only 20 to 60 seconds.
Vitamin D-injections have taken care of my head aches that came if I did too much physical work But my vitamin D level was a lot lower than in last Spring, so it can not be vit.D that caused this. So, the only thing I can think of is my methyl cobalamin injektions, which I have injected now with a proper dosage: 2,5mg every 36 hours.
I know that these injections have their influence on the brain, where they repair broken brain cells fixing their myelin sheath. I have been noticing the effect mostly in my cognitive functions but maybe it does more. It has helped with my problems to concentrate, memory problems, cognitive stress, irritated mood, depression and anxiety, that I know. But our brain has lots more functions and all of them use the brain cells. Maybe methylcobalamin can improve my physical functions through better working nervous system.
In a swedish study they found out that the longer CFS patient had injected methyl cobalamin, the less fatique they had and the better overall health they had. Some of them had been using these injection for more than 15 years continuously. I have injected only since year 2017 and only started to inject around january every year, when my symptoms had turned unbearable. BUT this time, I started injecting around December when I had my first cognitive symptoms and adjusted my dosage in February. Only since February I have had proper dosage first time ever.
I don't know weather I should inject in July and August because in earlier years the sunshine has had the same effect than injections have. This has been noticed also in my homocysteine levels which are indicators for the need of methyl cobalamin. It is the homocysteine in the brain and spine cord fluid that causes the symptoms but there are other chemicals in the brain causing the problems due to high homocysteine. Homocysteine is just a very good indicator. This all is caused by my gene mutation, so not every CFS patient have similar problems.
I hope you all are starting to feel better because of the sunshine. I do too much in order to get my sail boat floating again. In fact, my symptoms are almost unbearable the next day after fixing the boat but they go away too. During this time, the fatique is so bad that I have problems to feel any positive feelings and really enjoy Summer. But fixing the boat is enjoyable. The boat floats this thursday, and after that I can really rest.
So familiar to me. Do you get headache if you do too much?
I have been laying down at the back yard and got already some very mild sun burn. Not really a burn but a bit reddish skin. Like last year, red and NIR light has halped me so that I can have my sunshine with out nausea or other unwanted side-effects. But I noticed that if I am in the sunshine more than 1 hour 30 minutes, I start to feel uncomfortable. But I know that after a few days 1,5 hours become 2 hours and a bit later 2,5 hours and so on, with out feeling uncomfortable. I also noticed that if I am too long in the sunshine, I start to be over stimulated/over energetic and I can't be still just laying in my sofa. I am over achieving. I quess the sunshine is causing some human cells to produce energy...maybe.
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