Questions for Ron Davis

[raghav]

Mods can you make this thread sticky. Bump;

 

[Alvin2]

With the recent Telomere-to-Telomere sequencing being completed is there any plans to look into whether there are any abnormalities in ME patients that was not covered by past genetic comparisons?
https://forums.phoenixrising.me/threads/karen-miga-fills-in-the-missing-pieces-of-our-genome.85516/

 

[Rufous McKinney]

QUESTION: regarding ME Criteria used in research studies


@Janet Dafoe

Why are some recent research studies still using Fukuda criteria (or Oxford)....?

This leads to poor results in many studies.

Is this discussed by the research community? Is there anything patients can do to get this addressed ?

 

[Sophiedw]

how is Whitney? After his recent blog post saying he’d met friends and is scared for a back turn in his health? Is that off topic? All the very best

 

[wastwater]

Interesting drug maybe
https://www.akaritx.com/mode-of-action/

 

[Treeman]

Is BC007 to be tried in the nano needle? Thanks

 

[Treeman]

Have the severely I'll patients being tested for blood micro clots in accordance with the recent findings in long covid patients?

 

[Nuno]

Still waiting on the information about the ‘3’ drugs found to unlock the metabolic trap in vitro, video launched in November but still all quiet…. Zzzzz

 

[GlassCannonLife]

Still waiting on the information about the ‘3’ drugs found to unlock the metabolic trap in vitro, video launched in November but still all quiet…. Zzzzz

Yeah.. Wish we'd get more frequent updates.! I guess they don't want to compromise publications etc

 

[raghav]

@Nuno can you give the link to the video ? Thx.

 

[Zahr82]

Still waiting on the information about the ‘3’ drugs found to unlock the metabolic trap in vitro, video launched in November but still all quiet…. Zzzzz

Do you think all this is for real? Or

 

[Rufous McKinney]

I don't think Janet is able to visit this thread any longer...have any questions been answered recently?

 

[Consul]

I don't think Janet is able to visit this thread any longer...have any questions been answered recently?

Doesnt look like it. I wonder if there will be a new general update on youtube from Ron Davis soon, hes been doing one every 3-4 months for a while now but last was in november

 

[bthompsonjr1993]

I don't think Janet is able to visit this thread any longer...have any questions been answered recently?

what do you mean she isn't "able"? What would prevent her from being able?

 

[bthompsonjr1993]

Doesnt look like it. I wonder if there will be a new general update on youtube from Ron Davis soon, hes been doing one every 3-4 months for a while now but last was in november

Yeah, I am interested as to why there has been such a long period between his last update and whenever the next one will be. We are approaching 6 months now. Hopefully it is for a positive reason.

 

[Rufous McKinney]

What would prevent her from being able?

Questions haven't been answered in a long time.

 

[GlassCannonLife]

Questions haven't been answered in a long time.

I think they mean it's more a lack of interest than a lack of ability..

 

[Rufous McKinney]

a lack of interest

My opinion is this thread degenerated rapidly, and Janet likely found it very difficult to check around this thread again.

It should just be simple question to Ron Davis. Not lectures, debates, theories and philosophies. Janet is rather busy. And people have communicated in ways which are difficult for the Davis family.

 

[GlassCannonLife]

My opinion is this thread degenerated rapidly, and Janet likely found it very difficult to check around this thread again.

It should just be simple question to Ron Davis. Not lectures, debates, theories and philosophies. Janet is rather busy. And people have communicated in ways which are difficult for the Davis family.

Yeah good point. Maybe this could be a discussion thread, then a mod or someone can have one post (perhaps near/at the top) with ongoing answered and unanswered questions Janet could just check when she has time.

 

[bthompsonjr1993]

My opinion is this thread degenerated rapidly, and Janet likely found it very difficult to check around this thread again.

It should just be simple question to Ron Davis. Not lectures, debates, theories and philosophies. Janet is rather busy. And people have communicated in ways which are difficult for the Davis family.

Okay so yeah she is able to though. Saying she isn't able is very concerning to people. It implies she is in very bad health or something like that