@Gingergrrl
Thanks for the explanation. Yeah, maybe all of us with POTS are in the automimmune state. Seems likely, but who knows? There are people who are diagnosed with ME/CFS who do not have POTS. For ages, I just had the usual orthostatic intolerance.
In terms of ME/CFS, maybe the jury is still out on that one. There is so much more research happening in the last couple of years. I am no longer zealous about one case definition over the other, but Fukuda was ridiculous, in my opinion.
It is the insurance companies that drive me nuts. People have to hide from American insurance companies and from British psychiatrists. Australia turning into the US, in terms of money and power in some ways. Good thing that the research in Melbourne finally landed some money. Not enough, but better than it was.
Fortunately, no one pays much attention to New Zealand so we have it pretty good here in terms of health care in general. We just have to keep Australia from taking over in terms of what used to be local businesses. It's ridiculous. We had a lousy govt. in power for far too long and now we have a horrible housing crisis and homelessness has really taken hold. Leave it to me to change any conversation to politics! Well, any Aussie or Kiwi will understand there has always been playful banter between the two countries. So I don't mean any offense.
I always wanted to try IVIG, but rituximab scared me. I guess all we know now is where we are now, if that makes any sense. I always think back to some study they did in 2015 or so about how the immune signatures of people diagnosed with ME/CFS change over time.
As far as the ICC and calcium channelopathies, the only thing I would know to do is search the references and try to connect the dots as to who was doing what research at any particular time. I mean, you could write to those doing research but those people barely have time to eat lunch. Any spare time would go to seeking funding, I would think.