Potassium, Taurine, GABA and withdrawal

Mary

Moderator Resource
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Texas Hill Country
Man, we think we may have solved it!
It wasn't the food, it was the act of eating triggering their nervous system, and their nervous system was messed up because their Amantadine dose was too high!

Really glad you figured this out! Any time your partner starts doing worse, I would look at their meds first - is there a new one, or was a dose increased (as in this case) or decreased, etc. Doctors know next to nothing about "side" (actual) effects of drugs. It really is too bad we're basically on our own here . . . but we all are.

About benzo withdrawal - vitamin C might help. It helped me when I tapered off 1 mg. of lorazepam about 7 years ago. I took it every couple of hours, round the clock. (btw, it took me 8 months to get off that 1 mg. - I went very slowly) I don't have MCAS and am not nearly as sensitive to things as your partner.

One effect I ended up with from all that vitamin C was I started getting quite achey (apart from usual ME/CFS crashing) and tired and finally realized it was making me acidic - so I had to back off on my dosing.

https://benzobuddies.org/topic/221523-vitamin-c/

Also, I've been reading that vitamin C is supposed to help with MCAS. so it might help your partner with that. I've read that for people with MCAS it can be very important to get the right type of vitamin C. You may know about this already but the source of the vitamin C is very important and there's lots on line about vitamin C for MCAS. Obviously your partner might not tolerate it several times a day - but you might want to experiment with it.
 

pamojja

Senior Member
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2,495
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Austria
was it ascorbic acid or sodiumascorbate , a buffered variant?

Buffered, as far as I know, is a term used for a dry mixture of, for example, ascorbic acid and sodium bicarbonate (or other minerals). While sodiumascorbate usually means ascorbic acid chemically fully reacted with sodium bicarbonate, and therefore called sodiumascorbate, a chemically PH-neutral compound.

True, the buffered version would also chemically react to PH neutrality, as soon as dissolved in a liquid.

Personally with a very high intake of ascorbic acid at 25 g/d for 16 years (and many confounders), most of those years my blood PH has been 7.48 and thereby very alkaline. Only with recent years it returned to the upper half of normal range of 7.35 - 7.45.

Stomach acid itself is produced at about 8.75 g/d in an average human, but can have 10 to 100 times the acidity of ascorbic acid (perplexity.ai).
 
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