Even if we had just a QUARTER of the people sick with ME/CFS or similar neuro immune disorders rallying behind this or any other advocacy efforts, I would still seriously doubt our ability to make any sort of impact. At the very best this could make a small bit noise through publicity... but would that sound be audible enough for anything to change or diminish some public apathy?
In the meantime I will continue to donate a portion of my monthly SSI check to the WPI, because honestly, I believe they (and the science in general) is the best shot we've got.
I think you make a valid argument. Without the right proof, we would loose any lawsuit. There is still so much more research to be done before we can connect the dots and WPI is probably the best place to donate our money to."