People cured by laxatives & link with FMT

[JES]

Any idea why it did not work? I had a great day of remission in 2014 after some kind of food poisoning, so I still think you are onto something with the gut bacteria responsible for our symptoms.

I'm not too sold on the liver hypothesis as some of those are very specific symptoms, which most of us don't show up with, but good luck with the experiment!

 

[Mad Hatter]

First of all, the doses of oregano oil (very potent antifungal) and vinegar were small. I didn't want to put a lot of them on my first colonic. I wasn't even sure I would achieve my colonic, it was try. So it may be about the doses.

But I think that it rather is because there was nothing wrong with my colon. If I have candidiasis for exemple, the problem would lie in my small intestine, not in my colon & then a colonic wouldn't do nothing and what would work would be having a normal amount of bile down there.

Also, I didn't try with a bigger amount of oregano oil because it exhausted me. Must have been electrolytes loss. It was not fun. And I didn't see the first glimpse of health benefits so why would I try again?

Any idea why it did not work? I had a great day of remission in 2014 after some kind of food poisoning, so I still think you are onto something with the gut bacteria responsible for our symptoms.

I suggest you try to do a colonic, then only you can know if your problem lies in your colon. If it does not, it probably lies in the small intestine, and that may be indicative of a liver issue. Maybe food intoxication influences the liver too, I don't know. I am really hopeful about the protocol & will keep you updated whatsoever.

 

[Wishful]

I had a great day of remission in 2014 after some kind of food poisoning,

Yay food poisoning! Too bad its benefits are not reliable and repeatable. More commonly painful and messy.

I think our guts affect our ME severity, but aren't responsible for ME. A PWME might find a cure there, but only if their ME is working in some rare form where it's being held in that state by some factor created in the gut. The rest of us might find some reduction in some symptoms by gut intervention of some sort, but a given treatment might not work for more than just a few individuals. I'd be in much worse shape if I wasn't avoiding quite a few foods.

 

[Mad Hatter]

I think our guts affect our ME severity, but aren't responsible for ME. A PWME might find a cure there, but only if their ME is working in some rare form where it's being held in that state by some factor created in the gut.

In fact I think that what is responsible for CFS is also responsible for a messed up gut. Pasteur, who thought the body was sterile, is completely obsolete now. Gut bacteria live in symbiosis with us & the body has a lot of ways to regulate them. If the body doesn't, it not the fault of bacteria but the fault of a faulty mechanism in our body. Bacteria are like an organ. They are part of us.

 

[Mad Hatter]

We are the Many!

 

[hapl808]

We seem to have similar cases except that I don't experience PEM. I'm always exhausted on the moment, I can't get indebt energy wise. I'll keep you informed. I believe there is hope for your case.

I'm both. I'm always exhausted in the moment. I haven't had a feeling of 'not tired' for over eight years (since my decline into moderate-severe). However, if I'm not in a PEM crash, I'm 'only' housebound and not bedbound. If I have a PEM crash, that moves me to bedbound and unable to talk on the phone, etc.

 

[JasonPerth]

When i was Mild CFS and had a few IBS issues / constant inflammed stomach/ constant diarrhoea. I booked myself in for a colonoscopy, i also felt somewhat of a relief following the colonoscopy and flushing out everything. However it was short lived.
A fauly ANS and Dysautonomia issue wont care about a flush for long unless you stop eating.
I dont have the balls to try it but some get benifits from a 3 day fast.
In a protocol thats worked for some its the final step, its on a discord with many people about a CFS theory/protocol that adds up with evidence.

 

[Mad Hatter]

I did the Andreas Moritz protocol and it didn't help me. But nothing came out of me beside regular poop, there was no "cholesterol sludge" or gallstones. So I'm not gonna give up on that lead. I really think I have an issue with my bile flow/ liver/ gallbladder.

So I'm gonna take enzymes & TUDCA (synthetic bile salts that greatly improve bile flow & are medically used under an other form [UDCA] to dissolve gallstones)for two weeks and then do the flush again. I'll keep you updated.

Any carrion around? Long-forgotten containers hiding in your fridge? My canned coconut milk caught me by surprise, although the yellow tinge should have warned me. Are there any safe forms of food poisoning that provides effective gut flushing?

In the protocol I followed, before & after the flush you had to drink epson salt (magnesium sulfate) dissolved in water. And it makes you shit your guts out. You drink 15g of it. Wait for 2 hours, and drink another 15g. It takes 90 minutes to kick in, and about 5h to wear off. By the end you'll be shitting water. Don't eat anything hours prior of doing that.

 

[Wishful]

Yay food poisoning!

Yay! Another big win for food poisoning! I developed several new food intolerances some months ago, after what felt like a viral infection. I fixed one intolerance, but I remained intolerant to something in plant embryos, which means grains, seeds, potatoes (the eyes are embryos), etc. I recently had food poisoning from BBQ chicken from Walmart, which gave me a good flushing out. I can tolerate plant embryos again!

Maybe instead of a viral infection, I had a bacterial infection in my gut that gave flu-like symptoms.

I don't think spoiled food will be my first choice for treating food intolerances, but it's been successful twice by accident.

 

[Wishful]

I noticed that since my "flushing out", I've been significantly more energetic. For months, I hadn't been enthusiastic about my daily walks. Now I've felt like going for longer hikes. I've gone for 2+ hr hikes down my frozen creek (the snow is thin enough for easy walking), and I keep wanting to go again. The flushing out is the obvious explanation.

It's too bad that no one has yet developed a reliable flush/restore treatment for the digestive tract. A proper restoration of the microbiome might require certain fibre and nutrients and probiotics, possibly in time-release capsules, to get the right repopulation in the right places. There would have to be analysis of the pre-treatment microbiome and typical diet, and other factors that turn out to be important (blood type? Immune responses?), so it's not simple. I think it could be beneficial to a lot of people, because our digestive system can have a major effect on brain and body function.

I'm very happy with my accidental flush.

 

[bad1080]

It's too bad that no one has yet developed a reliable flush/restore treatment for the digestive tract.

i mean that's kind of what your body was doing, no? flush everything out and then repopulate the biome from the appendix.

 

[Wishful]

My incident was accidental, and unlikely to have reliable results. I'm thinking of something a doctor could prescribe, that does a reliable removal of microbes and reliable repopulating with healthy strains. I doubt that it's that simple, since we're all different, but having significant improvements following accidental flushes, I think it has potential.

 

[Wishful]

I expect that developing a flush/restore treatment isn't going to be a popular subject for R&D people, just because ... diarrhea.

"What are you working on now?"
"Mumble, mumble."

 

[Dysfunkion]

Any idea why it did not work? I had a great day of remission in 2014 after some kind of food poisoning, so I still think you are onto something with the gut bacteria responsible for our symptoms.

I'm not too sold on the liver hypothesis as some of those are very specific symptoms, which most of us don't show up with, but good luck with the experiment!

I'll never forget the time I eat some bad scallops over the summer and had TOTAL remission with my anxiety and anxiety linked cognitive dysfunction, my brain was really screwed up in other ways that day but the whole thing lasted a day and it was like a dream. That's how I knew my cognitive dysfunction was heavily linked with some sort of loops with my nervous system of sorts going on down there. After that day everything rebounded right back.

I can't predict my good days, I can only really do things that likely will lead to them but I haven't found anything for certain than fasting = much less brain fog but less of everything else I need rendering me useless if I do that too much. My guts already don't absorb things very well and it's very difficult for me to gain weight no matter what I eat. I eat more out of my limits and I just get sicker.