Who are these people? I've never heard of anyone except for Hornig and Vernon, and Vernon has an iffy track record as far as supporting real research.
Who are they? I can only comment on one, Benjamin Natelson, who is attached to one of the hospitals in NY. I will preface by saying that I have a decades-long history of post-viral CFS (with encephalitis), followed about 18 years later by a degenerative period that is even more consistent with ME. Most of my symptoms were directly associated with infections or other medical events and definitive points in time.
Dr Natelson is involved in a CFS study that sounded decently useful, so I went to see him last June for the purpose of being evaluated for inclusion in it. I offered to provide any of the many test results I've had in recent years, including those demonstrating chronic immune abnormalities. None were requested and no more than a superficial history was taken, after which Dr Natelson told me I was excluded. Based on?.....too many symptoms? Too many complications from long-standing neglect?...He didn't say directly, but recommended psychotherapy after giving me a dose of the usual - though shocking in this instance -"When did you go on disability, what were you doing before that, why haven't you been working", etc. Zero interest in critical - medical - aspects of my history.
