Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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No it cant be delayed for long. And NICE could be ordered by a High Court Judge to publish the guidelines. If I had the money I'd do it.
A Judge would'nt be interested. What would be considered is: Has due process been observed? Answer is yes. The NICE committee has looked at all the evidence presented and came to a conclusion. So if NICE refused to publish the question would be "Why not publish?". They dont have a good answer. Game over.Maybe that's what they want. Another few years of evidence presentation and discussion in court.
We recommend GET because we think it's more important to have a therapy that allows some health care providers to maintain their hospitals than it is to upkeep our medical ethics that forbid us to make harmful recommendations. The sacrifice of these patients is appropriate because their sacrifice ensures the survival of the psychiatric community and their credibility. After all, who knows when we will need them again, and we can't risk harming their egos. Hence, we ignore the evidence just as they do. They are good examples for our medical community, after all. What's more important than ego and financial profit?
I suspect there is a financial link, but it's a bit more subtle and insidious. The cost of healthcare is a large drain on governments and economies. The more sick people a nation has, the larger the economic drain in trying to care for them. For example, look at what the American Diabetic Association says about the cost of diabetes-327 billion to the US economy in 2017.I think Follow the Money will explain the ongoing scandal in Britain. But here in the US?
but it's a bit more subtle and insidious.
That's the other really interesting thing. I get the feeling a large number of these BPS and anti-actual scientific data folks think we could correct this if we just tried hard enough. Obviously we are getting secondary gain from being sick and are really enjoying our sick role. We are, after all, just malingerers and not really sick.Our productivity- they forgot- that if we could correct this, most could work or do something more than rot.
We are all just suposed to bootstrap ourselves and it's our own fault if we won't.
At this point they have all the data they need to conclusively shut the clinics down and change the process, since they refuse to I would say we are now at the stage where NICE is willingly allowing Doctors to knowing hurt patients.
Just think of all the people with ME/CFS and now long COVID and how much it would cost to take care of us, if we got real healthcare instead of GET and CBT.
Erm... I don't get the feeling my society expects that.Yes, that might mean extra costs for disability support, but that's what society expects for the disabled.
Erm... I don't get the feeling my society expects that.
In the US much disability care is done through Medicare. The precurser to Medicare was proposed by Truman in '45. It took until '65 and Johnson to get it passed. I'm sure ordinary voters had something to do with it's eventual passage, but 20 years to get a bill passed doesn't speak to me of the people in general being really in favor. Disability coverage wasn't added to Medicare until 1972. I'm not sure there was any health coverage for disabled people in the US before that. There's a five month waiting period for disability benefits and then a 2 year waiting period for Medicare benefits, if you manage to convince someone you qualify for SSDI.I think voters voted to establish care for the ill and the disabled.