• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

New York Tri-State

Hi,

I am in desperate need of a specialist in the NY tri-state area. I have seen Dr. Susan Levine who was actually very helpful with the initial diagnosis, and putting me on medications, but I need someone who I can talk to about ongoing care. I find her to be pretty rude and unable to communicate.

Does anyone know someone in the NY tri-state area who is worth seeing?

Thanks!
 
Messages
48
@SickOfBeingSick9 Did you get any useful feedback on your question? I've been diagnosed and under treatment for 18+ months. However, I may be moving back to the NYC area so am interested to find out too!
 
Messages
48
@Hip thanks for the link. The point I am most interested in the experience of follow on care after initial diagnosis
 

Hip

Senior Member
Messages
17,918
The point I am most interested in the experience of follow on care after initial diagnosis

I hope someone can give you some personal experience on this question. Generally leading ME/CFS doctors have long waiting lists, so that is an issue. If it is just for getting repeat prescriptions, you might consider a local ME/CFS-friendly doctor rather than one of the famous leading doctors.