Pea
Senior Member
- Messages
- 124
Hi everybody, I hope you can give me some direction on next steps. I came here from the Better Medicine site on B12 deficiency being misdiagnosed and there are so many things on this site I'm learning from and that strike a chord.
The short story is my dear dear friend (D) has sustained neuromuscular damage. I strongly suspect it is from B12 deficiency. In gathering documents I noticed his RBC was always low and his MCV and/or MCH was always high since 2006... I cannot tell you how many symptoms he has had of this over the years, telling his doctor he was weak, tired, achy muscles, blurred vision. He's been very pale lately and is confused at times, but it comes and goes. His B12 has never tested however..
Fast forward and we have an appt. with a neurologist in 3 weeks. Will neurologist test for B12 and the others - MMA, HCY, HoloTC? Or should I try to get this tested now to get a baseline and then try to supplement him in the meantime to prevent further damage? I did call the neurologist to see if they would test for it now, and the nurse said I should go through his primary for something like that....
I could go on & on about this, there are so many interrelated things I can find which points to what is happening to him. It almost always seems to come back to gluthione and heavy metal toxicity. Piecing this together and I am convinced this is going on, but it's just killing me to waste more time.
I think he has heavy metal poisoning and suspect he may have the gluten/celiac problem since he has had gastric problems for years and seems to have a lot of mucous. The worse symptoms (slurred speech, stroke ruled out) got worse since he had a gastroscope (the anesthesia?) and then they put him on Prilosec which maybe further messed up the B12. He also stopped taking vitamin supplements and eating fruit etc. I wonder if it all became to much for his body to process the toxins.
Will neurologist test for celiac/gluten antibodies?
His father had polio, I'm mentioning that as I saw Rich refer to it.
His siblings aren't aware of any gluten/celiac or B12 deficiency in the family.
He also has a metal rod replacement for his femur.... another heavy metal source?
Just looking for some guidance to get through the next 3 weeks. Are there supplements he can take now help him rid of toxins but which won't mess up any blood tests the neurologist may do i.e. Alpha Lipoic Acid, SAMe?
thank you all.
The short story is my dear dear friend (D) has sustained neuromuscular damage. I strongly suspect it is from B12 deficiency. In gathering documents I noticed his RBC was always low and his MCV and/or MCH was always high since 2006... I cannot tell you how many symptoms he has had of this over the years, telling his doctor he was weak, tired, achy muscles, blurred vision. He's been very pale lately and is confused at times, but it comes and goes. His B12 has never tested however..
Fast forward and we have an appt. with a neurologist in 3 weeks. Will neurologist test for B12 and the others - MMA, HCY, HoloTC? Or should I try to get this tested now to get a baseline and then try to supplement him in the meantime to prevent further damage? I did call the neurologist to see if they would test for it now, and the nurse said I should go through his primary for something like that....
I could go on & on about this, there are so many interrelated things I can find which points to what is happening to him. It almost always seems to come back to gluthione and heavy metal toxicity. Piecing this together and I am convinced this is going on, but it's just killing me to waste more time.
I think he has heavy metal poisoning and suspect he may have the gluten/celiac problem since he has had gastric problems for years and seems to have a lot of mucous. The worse symptoms (slurred speech, stroke ruled out) got worse since he had a gastroscope (the anesthesia?) and then they put him on Prilosec which maybe further messed up the B12. He also stopped taking vitamin supplements and eating fruit etc. I wonder if it all became to much for his body to process the toxins.
Will neurologist test for celiac/gluten antibodies?
His father had polio, I'm mentioning that as I saw Rich refer to it.
His siblings aren't aware of any gluten/celiac or B12 deficiency in the family.
He also has a metal rod replacement for his femur.... another heavy metal source?
Just looking for some guidance to get through the next 3 weeks. Are there supplements he can take now help him rid of toxins but which won't mess up any blood tests the neurologist may do i.e. Alpha Lipoic Acid, SAMe?
thank you all.