Neuroinflammation in Patients with CFS/ME: PET study

[Kati]

hehehe
I meant something like "final diagnostic".
Something like, "hmm you have this symptoms, lets check for neuroinflamation... Yeah you have it. That's ME"

Neuroinflammation is present in many neurological conditions. Alzeimer's, Parkinson's, MS, and more. In my opinion, neuroinflammation is yet another clue that something is going wrong with us, and hopefully it gives researchers another clue about where to look and how.

 

[Folk]

Ah sure...
Thanks!

 

[Bob]

I don't know why but i seem to have been a a bit slow familiarising myself with this line of research. I see that Simon has blogged about this research, quite thoroughly.
Just posting the links to Simon's blogs here for reference:
http://forums.phoenixrising.me/inde...up-microglia-could-be-driving-symptoms.30645/
http://forums.phoenixrising.me/inde...uroinflammation-encephalitis-in-me-cfs.29941/

 

[Biarritz13]

I did a PET Scan and I wonder if ME/CFS patients have a cerebral PET Scan result similar to Lyme patients. Thx!

http://www.ncbi.nlm.nih.gov/pubmed/12124483

 

[Aerose91]

I did a PET Scan and I wonder if ME/CFS patients have a cerebral PET Scan result similar to Lyme patients. Thx!

http://www.ncbi.nlm.nih.gov/pubmed/12124483

I believe so, yes. I did a SPECT and had all the markings of lyme encephalopathy and then some

 

[Justin30]

I did a PET Scan and I wonder if ME/CFS patients have a cerebral PET Scan result similar to Lyme patients. Thx!

http://www.ncbi.nlm.nih.gov/pubmed/12124483

What were the results if you dont mond sharing?

 

[Justin30]

I believe so, yes. I did a SPECT and had all the markings of lyme encephalopathy and then some

Where do you get these test done in Canada it seems impossible.even though we have the CCC criteria to say to use them.

 

[Biarritz13]

I believe so, yes. I did a SPECT and had all the markings of lyme encephalopathy and then some

Which were exactly? What was it written on the report?

What were the results if you dont mond sharing?

Exactly what the publication showed

 

[Aerose91]

Where do you get these test done in Canada it seems impossible.even though we have the CCC criteria to say to use them.

I got mine at the AMEN clinic. I just made the appt myself and had to pay put of pocket but it was worth it

 

[Living Dead]

I also get bumps in my head like I fell or got hit by a bat.

Old post, but this is a symptom of lupus.

 

[Aerose91]

Which were exactly? What was it written on the report?



Exactly what the publication showed

 

[Justin30]

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So he actually diagnosed ME using the SPECT like Dr Byron Hyde would have.

Did Dr Amens office know ahead of time if you had ME? And Anxiety Disorders?

So interesting....

 

[Justin30]

@Aerose91 does Dr Amen only work out if thay clinic in NY because he has clinics all over the country?

Do you know if he reviews all data?

 

[Aerose91]

@Justin30

I didnt see Dr Amen personally, just one of the psychiatrists that worked there (they're all psych.s because its principally that type of clinic).

I didn't tell him anything prior to the test because i didnt know anything for sure at that point. When he was going over the results with me i asked him what he thought it looked like and he said "mitochindrial disease" I then told him i likely had M.E. and he agreed.

Also worth noting- amen clinics has a scan model they use for "chronic fatigue syndrome" and mine looked nothing like it

 

[Justin30]

@Justin30

I didnt see Dr Amen personally, just one of the psychiatrists that worked there (they're all psych.s because its principally that type of clinic).

I didn't tell him anything prior to the test because i didnt know anything for sure at that point. When he was going over the results with me i asked him what he thought it looked like and he said "mitochindrial disease" I then told him i likely had M.E. and he agreed.

Also worth noting- amen clinics has a scan model they use for "chronic fatigue syndrome" and mine looked nothing like it

Wow....are you more severe or moderate mild?

 

[Justin30]

I prsonally think they should be using this technology and contacing Hyde and maybe even Amen to discern SPECT can reaults.

 

[halcyon]

Amen does not have the best reputation here in the medical community from what I've seen.

 

[Aerose91]

Wow....are you more severe or moderate mild?

In regards of symptoms? My brain is the worst of any M.E. patient ive spoken to or my doctor has seen.

 

[Justin30]

In regards of symptoms? My brain is the worst of any M.E. patient ive spoken to or my doctor has seen.

I am really sorry to hear that. But with tegard to PEM etc. And you functional capacity to move around are those greatly affected? Thanks for sharing your reaults with us.

 

[Justin30]

Amen does not have the best reputation here in the medical community from what I've seen.

I have heard this as well. He does not publish work. But that being said he has done of 100,000 SPECT Scans and published many books.

Just a personal observation that many in the medical profession that work outside the box and/or very strictly within the box get somewhat of a tarnished name.