Hope we will get a positive update from you one of these days.
I’m still generally using the light twice a day. 6 mins in the am and 4 in the pm, as close to 12 hours apart as possible, although I skip the second dose if I’m able to get myself outside to lay in the sun (1-2x a week). I’ve mostly stabilized this week since getting my covid vaccines - my second one was 2.5 weeks ago. I was much better prepared for the second, able to manage the resulting flare ok with quercetin and curcumin. My resting heart rate is still not back to pre-vaccine levels but I’m feeling pretty much at baseline the last few days anyways, able to brush teeth/wash face again every day which wasn’t possible for a few weeks there. I am putting myself into slight PEM every week though, it’s so much harder to stay completely sedentary with lovely weather and our little private lake outside my back door! But the PEM never gets as deep as it was earlier this year, and being able to get outside makes such a difference in my mental health that it feels worth it.
I actually do feel like I’m getting stronger, even though my heart rate hasn’t quite settled. It feels like I can socialize with my family a little more consistently throughout the day, and I‘m able to read a whole page of text (very slowly), yippee! I could hardly read 2 sentences not that long ago. And the less intense PEM feels quite remarkable, more of a wave than a devastating crash every time. I have more tools to cope with PEM too, which probably plays a big role in things not feeling so awful or out of control. I feel like I’ve graduated from an ME/CFS junior to my sophomore year.
Dubious honour, perhaps, haha!
I started Moscowitz and Golden’s Neuroplastic Transformation workbook last week. It’s slow going, but just cracking it open feels like a big accomplishment since I wasn’t well enough to even think about doing something like that a short time ago. I might start a thread to journal my experience with the workbook one day too.