Yes, I miss being able to have hot baths and drink hot tea, etc... I used to love anything hot! That’s one of the psychological benefits of the light therapy for me, a few minutes of feeling good and warm without a crash afterwards.
I’ll read this in time, good suggestion. I feel good about the dose I’m at, since I‘ve seen improvements from the 9 min dose. I’ll stick to this for a while though, not in a rush to titrate up. I tend to get a gut feeling that builds over a week or so and that’s how I know I want to try a higher dose.... Not very scientific, haha, but it’s worked for me so far.
Trusting that my cells are giving me the ok once they feel they can handle more. I think Whitten suggests 10-15 mins/dose for severely ill folks, either once or twice a day. Occasionally I only do 1 dose/day and it doesn’t seem to make a difference in my energy, but my muscles feel much more relaxed in the evening and overnight.
Actually you got me thinking maybe I remembered the dosing instructions wrong so I went back to check. Whitten says up to 10-12 mins for fatigue (not 15), but severely ill folks should start out with 1/2 or 1/4 of the dose and possibly shouldn’t need to go up that high. Since I’m feeling ok with 10 mins at a farther distance from the light maybe I could do a shorter dose closer to the light to get a bit deeper into the tissues. Plus you’re probably right that 2 doses/day is overkill. At the beginning my dose was so small and I felt it made a difference to do it twice, but I’m in a different zone by now. I’ll make a few tweaks and see what happens.
Haha, one can always hope! Your dosing suggestion got me paying attention to my symptoms in a different way - like I said, I am seeing improvements in drastic reduction of PEM, but I’ve also noticed more muscle aches the last month or so, which lines up with my higher dosing. I had chalked it up to my magnesium deficiency til now, since it takes a notoriously long time to reverse that deficiency even on high dose magnesium. But the Grasping For Objectivity woman says she got muscle aches at a slightly too high dose. I’ve only been watching for extra fatigue/headache, so I may be missing a more nuanced clue. It’s definitely worth experimenting with. I’ve also only been guessing at how close I’ve been to the light, given my mobility challenges, but I’ve got my kids to set me up with a measuring tape now so I’m all set to get more specific.
Oh! No, I bought an electronic copy of it off Amazon. But it was only a few dollars.
Hey folks, here’s a little diary of my experience with IR/NIR light therapy. I’ve been using it for 2 weeks... been wanting to post about it sooner but I’m starting from a severely ill place and haven’t had the energy til now... I’ll post a little at a time over the next week or so to catch up on the stages I’ve gone through so far.
Why this light?
I bought an Orion 1000: https://www.orionrlt.ca/products/orion-1000 I’ve been reading other people’s IR/NIR posts here for months and had a feeling it would help me a little, but initially I thought the price was out of reach and I don’t have access to anyone who can build one for me. But then I qualified for CPP Disability and got some backpay, went back to the Orion website and their full-body machine happened to be 40% off. I bought it the next day, happy serendipity.
Illness history:
I’ve been ill since October 2019, sliding between a 0.5 and 2.5 on the severity scale. Before using the light I had been a level 1 since about October. Unable to sit up or do anything except walk to the bathroom, often needing help with that. Struggling to tolerate food and spending most of the day totally incapacitated, usually with 1-3 hours of feeling a little less ill in the late morning/mid-day.
I received the light in the mail on Feb. 5, 2021 and started using it the next day. I’ll leave you in suspense for the rest til I have another little burst of energy.
Hi @max_yazhbin I’m glad it seemed to help, although it must be frustrating not to have better access to it.
). I LOVE IT! I got my first Pfizer a week ago Friday and it has knocked me for a loop, lots of fevers and aches and inflammation. Having the second dose farther apart makes a huge difference. Since the vaccine, my resting heart rate rises about 30 bpm higher in the afternoon/eve than in the morning. But I turn the light on for a few minutes in the eve and literally just watch my heart rate creep down about 20 bpm. Noticeable relief of the inflamed feeling in my back, neck and thighs. Much less restlessness at night. Ahhhhhhh.
So did you buy the Platinum Biomax 900?
I don't know the differences, but can you tell me why you think that the all NIR would be better than the 50/50? If you have the 50/50 can't you just use the NIR mode? And why do you think that you don't need to use the Red mode?
