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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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My recovery story

Ian

Senior Member
Messages
283
I've noticed that a lot of the cavitation discussions have dead links. Specifically anything about the Cavitat scanner. Has the Cavitat scanner been removed from the market? Its difficult to research cavitation surgery/procedures - not finding a lot of recent information (most of it is about 10 years old). Its impossible to find local dentists that can even discuss the procedure. Has the procedure become too dangerous or too costly with no benefit?

This is what happened .. I'll paste it here because the link might disappear.

Open letter to Dr. Shankland’s patients:

From Dr. Wesley Shankland:

....................

In an effort to provide you a history of this situation, I am sharing this timeline of events leading to my required sabbatical. I believe this information will expand your insight into what has truly transpired over the years. Hopefully you will agree the accusations against me are driven by an outside entity.

I have been treating patients with various forms of ischemic bone disease (e.g., osteomyelitis, osteonecrosis) since 1986. In 1998, I met Mr. Bob Jones of Aurora, Colorado. Mr. Jones, a former captain for American Airlines and an engineer had recently recovered from the devastating effects of jaw bone lesions which had painfully consumed years of his life. As a result of his own debilitating experience, and his passion to bring hope and help to others, he and his son (an acoustic engineer) invented an ultrasonic device called the Cavitat. This non-invasive imaging device was designed to effectively locate bony lesions (termed cavitations) in human jaws. The development of the Cavitat greatly improved our ability to diagnose and effectively treat these painful problems. I began using the Cavitat in the late 1990s.

In addition to using this wonderful ultrasonic device, I also conducted research, which was used in a study designed to demonstrate to the FDA that this device should be approved for use by dentists to aid in diagnosing jaw bone cavitations. I also lectured and testified to an FDA scientific panel, which was comprised of PhDs, MDs and two DDSs.

Although the FDA approved the sale and use of the Cavitat, Aetna Insurance Company contacted other insurance companies and reported that jaw bone cavitations did not exist. Aetna Insurance Company also informed others that the Cavitat was inaccurate and those who used this device were “quacks.†Such negative and inaccurate publicity literally ruined Cavitat’s sales. With no other recourse, Cavitat Medical Technologies made a decision to file a federal law suit, in Denver, against Aetna Insurance Company. I was asked to testify in federal court on behalf of Cavitat Medical Technologies, which I agreed to do.

Almost immediately Aetna Insurance Company filed a federal law suit against me in an effort to intimidate me not to testify on behalf of Cavitat Medical Technologies. The lawsuit was dismissed by a federal judge as having no merit. This lawsuit certainly had no merit, but I did incur sizable legal expenses to defend myself.

On the advice of my attorney, I declined to testify personally in the Cavitat case, but I did write an extensive scientific report concerning cavitations and the accuracy of the Cavitat device in diagnosing jaw bone lesions. This report was critical in the outcome of Cavitat lawsuit against Aetna Insurance Company. Ultimately, Aetna Insurance Company LOST the lawsuit!

Following the loss, one of Aetna Insurance Company’s attorneys bragged in a federal courtroom that they would “get those guys,me being one of the two people targeted by Aetna. Thus the intimidation attempt has continued.

At this time, to the best of our knowledge, Aetna Insurance Company has yet to pay the “undisclosed amount”(speculated to be around $100 million) of this settlement, even though ordered to do so by a federal judge.

A belief held by some individuals close to this case would suggest that it is the intention of Aetna Insurance Company to discredit key witnesses who were involved or presented reports used as evidence in the litigation between Aetna and Cavitat Medical Technologies. Based on the fact that the scientific information I provided was critical to the outcome of the case, it is believed that Aetna Insurance Company is making diligent attempts to discredit me in the eyes of the federal court, my colleagues, patients and friends. Remember, to our knowledge, Aetna Insurance Company has not yet paid their large settlement. Wouldn’t it look good for them to file for an appeal, then try to persuade the court that a doctor whose report was used by the court to base their earlier judgment, is now not fit to hold a license to practice dentistry?

Interesting tactic! And, a lot less costly for them than paying the huge “undisclosed” settlement, as ordered by the court. This is the type of ongoing legal battle I would be faced with had I tried to continue my own defense.

Another point of interest is that prior to the federal lawsuit, I was singled-out and investigated on multiple occasions by the investigative branch of the Ohio State Dental Board (OSDB). Leading the investigative assault against me were the following two women, Dr. Eleanor Awadalla, of Toledo, OH Former secretary of the OSDB, and Rebecca Hockenberry, Assistant Administrator of the OSDB, neither of whom ever asked to speak to me personally. It is my understanding that Dr. Eleanor Awadalla was also a paid consultant of Aetna Insurance Company during the time of her investigation against me. This should have been considered a direct conflict of interest!

In August, 2006, after a lengthy investigation, and scouring through 76 patient records, an individual from the OSDB contacted Eve Mueller, a reporter at WBNS-TV in Columbus. Ms. Mueller showed up at my office on Friday afternoon, demanding an interview with me about charges I have never even seen! I spoke with her by phone and that evening, Channel 10 ran two inflammatory stories about me, which were anything but objective or truthful. In violation of the law, this award-winning reporter was given a list of charges filed against me by the OSDB five (5) days before I received them! As a seasoned reporter, Ms. Mueller should have recognized that being the first to report such “breaking news” was actually breaking the law! It was unethical of this reporter and WBNS-TV to report on insider information received prior to my knowledge of charges made against me.

During the past several months, my legal defense team has made attempts to negotiate with Jon Fulkerson, the state-appointed prosecuting attorney, Dr. Awadalla, and the current OSDB secretary, Dr. Ed Hills of Cleveland, to no avail. The full OSDB, consisting of my peers and dental hygienists has never been involved in the decision making process regarding my suspension, but rather only a three member investigative team has been responsible for making critical decisions regarding the suspension of my license and future of my practice of nearly 29 years!

These events bring us to today. In February of this year, under the advice of my legal counsel, much prayer and discussion with family members and close friends, I acquiesced and signed the Consent Agreement. As you can imagine, this was an extremely difficult decision, but necessary to move forward and continue my life’s passion – those suffering from TMJ disorders and craniofacial pain.

HOW YOU CAN HELP:

The allegations against me were gleaned from a five-year review of many, many records and not the result of any patient complaints. Unfortunately, the individual who chose to publicly accept the spotlight in an effort to defame me was untruthful with her statements. In reality, several patients actually involved in the allegations were willing and eager to testify on my behalf; however the investigative team of the OSDB (consisting only of three individuals) was not willing to hear or interested in their testimony.

Since the beginning of the media coverage, our office has been inundated with phone calls and emails from faithful friends, colleagues and patients asking how they can help. Simply stated, I respect our patients’ privacy and I have chosen not to compromise the confidentiality of any of our patients by making individual records or cases a matter of public information.

However, if you would like to write letters to our Governor and the Ohio Inspector General to share the experience you have had with me personally, professionally or as your dental or pain management resource, I would be very grateful and would appreciate your help.

Write letters of support for me and asking for an investigation of the Administrative Branch of the OSDB because of suspected conflicts of interest, corruption, and unreasonable penalties to:

I know by the time they had finished with Cavitat, they had some government agency raid their offices and take everything, all research, patent notes, everything. The crazy part was cavitat won their lawsuits against Aetna, but in the end it didn't matter.
 

Mij

Senior Member
Messages
2,353
I know this is just one story. But I’ve heard and read many other similar stories. Based on my own experience and research, I just don’t believe root canals are as benign as endodontists normally claim. I believe that even if everything is performed competently, the failure rate is most likely very high. Unfortunately, these failures don’t always make themselves known by overt physical symptoms. Only after having an offending root-canaled tooth extracted is it better known to what degree it was impacting overall health.

I worked for the top endodontists in my area and that statement/ conclusion is false. Reading horror "stories" online may bring you to that conclusion but it's not the reality. There are instances that improper procedures were performed, but to make blanket statements that root canals are somehow making you sick is just speculation.
 

Ian

Senior Member
Messages
283
There are instances that improper procedures were performed, but to make blanket statements that root canals are somehow making you sick is just speculation.

No study exists that says its possible to fully sterilize a root canal. No matter how well it's done infection always remains. Whether this will effect your general health will depend on many factors, but personally I would never have another root canal.
 

Wayne

Senior Member
Messages
4,308
Location
Ashland, Oregon
Dr. Mercola's website article on root canals...
..................................................

Root canal is a commonly performed procedure in most adults. But is it a wise one? Dr. Robert Kulacz, a dentist, has spent a significant portion of his professional career trying to answer this question.

What he discovered profoundly changed his life, and led him to write a book about his findings called, The Toxic Tooth: How a Root Canal Could Be Making You Sick, which I think is among the best available on this subject.

Dr. Kulacz began practicing dentistry in Brewster, New York. After six years as an associate, he opened his own practice in Somers, New York in 1992, where he performed all the conventional procedures of dentistry, from restorations to extractions and root canals.

"I did a lot of root canals for many years," he says. "Everything was going smoothly until one day, a patient of mine said to me, 'You know, I heard from my physician that root canals may be bad; that root canals may cause or contribute to other diseases in the body.'

And I said, 'You're crazy. Who is telling you this? That's impossible.' He said, 'You got to look at this information.' He gave me websites of organizations like the International Academy of Oral Medicine and Toxicology (IAOMT) to look at.

I went on to explore this topic so I could come back to him and say, 'Here is where you're wrong, here's where your physician is wrong, and here is where the American Dental Association (ADA) is right.'

Lo and behold, I found out they're right; I was wrong.

I looked at Weston Price's work, the work of Rosenow, and others. I decided to go to an IAOMT meeting... Dr. Boyd Haley's lecture on root canals and how toxic they are changed my life. I realized I was wrong... From that day on, I changed my practice."
 

Ian

Senior Member
Messages
283
The work of Rosenow was really quite fascinating. He had really nailed the problem 100 years ago.
 
Messages
24
Hi Ian, nice to know you. I think I had a bit of similar issue over here:
http://forums.phoenixrising.me/index.php?threads/new-member-here-was-it-cfs.37918/

About the area of your cavitation, is it on the wisdom tooth area? My experience says only wisdom teeth area or probably 2nd molar inflammation may cause CFS.

Also how does cavitation happens exactly, I think I saw small granulomas on root of my inflamed tooth, after they were out. Am I at risk on the cavitations, too?
 
Messages
12
Thank you Ian for posting your story! It educated me and helped me quite a bit.

Here is a post I put in another part of the forum, and meant to put here.

I suffered from exhaustion and cfs off and on. I first realized something was wrong after I came home from a sailing charter and slept three days straight without getting up, even to pee!
I just found the site after searching for cavitation surgery in Google. I need to have cavitation surgery for my wisdom teeth and three extracted teeth. I cannot wait.

I have a white mass at the end of my nerve in my lower jaw. I've had dentists say it's bone overgrowing to a cyst. It looks like infection to me maybe. Bone overgrowing, I hope so!
 

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12
Graced, thank you for sharing your story which sounds similar to mine. I had four root canals so that led me to research them. What did the lipoma look like on the xray, could they see it?
 
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Jonathan Edwards

"Gibberish"
Messages
5,256
Dear colette321,
Nobody here is a dental radiologist so nobody can help you. And if they, were they should not give an opinion without proper clinical context. It would be irresponsible and open to legal challenge. You need to get the opinion of a professional.
 

Hip

Senior Member
Messages
17,874
@colette321
I take it you are trying to figure out whether your fatigue and ME/CFS symptoms might be caused, at least in part, by a possible infection (osteomyelitis) located within a cavitation in your jaw bone.

You really need to find a dentist who specializes in diagnosis and treatment of jaw bone cavitation infections, and interpreting X-rays. I think they tend to use a panoramic dental X-ray to detect jaw bone cavitations. But these cavitations can be hard to spot.

In this post you can see the dental X-ray of @ERROL_FARNHAMSURREY, which shows two necrotic cavitations. Note how hard these cavitations are to see. So you need to see a specialist for diagnosis.

Though I understand that jaw bone infections may cause a sour, bitter taste in the mouth causing bad breath or even gagging, so that can be a clue.



Cavitations can be left in the jaw bone after a tooth extraction (apparently especially when not all the periodontal ligament from the extracted tooth was removed), and cavitations can also be created as a result of osteonecrosis (the death of bone tissue due to poor blood flow to the bone). 1 When these jaw bone cavitations also induce facial pain, they are called NICO lesions.

More info on the diagnosis and treatment of jaw bone cavitation infections is given here and here.
 
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Wayne

Senior Member
Messages
4,308
Location
Ashland, Oregon
You really need to find a dentist who specializes in diagnosis and treatment of jaw bone cavitation infections

Hi @Ian

Thanks again for this thread and your ongoing comments. I've been wondering recently if there might be way(s) to avoid cavitation surgery, and just tonight ran across this post on a Yahoo forum. Here's a snippet::

Hi Mary Ellen,
Please pause before submitting to further "cavitation surgery".
Cavitation surgery is designed to open up the cavity, remove necrotic tissue and saw you back up. It is grizzly, and recovery is painful and long.
--Explore Ozone injections [actually a mixture of ozone and medical oxygen]. About 7 to 12 injections generally clear up the cavitation and allow bone growth to fill in.
Google 'X-tip" and/or "stabident". Find an ozone dentist and ask if he/she does cavitation injections.
--Look up Sook Hong, DDS, in Sunnyvale or here are two more in Marin County:
http://www. marindentalwellness.com/marin- dental-wellness-about.html
http://www.smilemarin.com/ location/

I would be most interested to hear your take on whether using ozone might possibly help someone avoid cavitation surgery. Or whether ozone, and/or some other type of deep penetrating oral antiseptic (such as oregano oil), or conentrated vitamin C, etc.) could at least ameliorate some of the effects of chronic, years old infections. -- Thanks.
 

Ian

Senior Member
Messages
283
Well, all ozone can do is temporarily kill the anaerobic bacteria. It's not a solution to surgery. Personally I'd avoid any dentist that offers it as a treatment because its basically a waste of time. You can liken it to having your fingers get frost bite, go black and die, and expecting to bring them back to life with ozone. A cavitation is a basically a type of necrotic bone lesion.
 
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Ian

Senior Member
Messages
283
Thank you Ian for posting your story! It educated me and helped me quite a bit.

Here is a post I put in another part of the forum, and meant to put here.

Well that very much looks like a cavitation. You can still see where the roots of the tooth were. How long ago was it extracted? Also I've no idea what the white mass is on the left. It might be condensing osteitis, basically the bones response to a long term chronic infection.
 
Messages
12
Dear colette321,
Nobody here is a dental radiologist so nobody can help you. And if they, were they should not give an opinion without proper clinical context. It would be irresponsible and open to legal challenge. You need to get the opinion of a professional.

Yes, Jonathan I have seen many many dentists. I am completely aware of the purpose of this forum and looking for others who have been through the cavitation surgery to comment with their opinions. Do not worry. No one is looking for a medical opinion, I am fully aware that this is a WEBSITE of non-professionals who are sharing their experiences. Do not worry. Thank you.
 
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Messages
12
Well that very much looks like a cavitation. You can still see where the roots of the tooth were. How long ago was it extracted? Also I've no idea what the white mass is on the left. It might be condensing osteitis, basically the bones response to a long term chronic infection.

The tooth was extracted 3-4 years ago, as a simple extraction. It was a root canaled tooth, which didn't have any pain. (It also didn't had a 'bad odor', which my other two extracted teeth had - one which was root canaled and one that was crowned. That was very disconcerting.)

I'll research condensing osteitis. It is attached to the nerve so something's going on there.

Did your health coverage pay for the surgeries you had at Munro Hall Clinic?

**Thank you Ian
 
Messages
12
Thank you Hip! I have known about cavitations for awhile and had just found a dentist schooled in them. I am re-educating myself. Where I am, you can count on one hand the number of dental professionals aware of these things within a multi state radius.
Yes, I know my symptoms are caused by this and the root canaled teeth. As for ALL the CFS symptoms, some were aided by supplemental iron, a simple and beautiful solution.
 
Messages
12
@colette321
In this post you can see the dental X-ray of @ERROL_FARNHAMSURREY, which shows two necrotic cavitations. Note how hard these cavitations are to see. So you need to see a specialist for diagnosis.

I am waiting for my Panorex xray, the same format as @ERROL_FARNHAMSURREY in the mail so I can scrutinize it myself. The dentist is always very stressed when I see him and I haven't had the opportunity to really look at it myself.
 
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Ian

Senior Member
Messages
283
Yes, Jonathan I have seen many many dentists. I am completely aware of the purpose of this forum and looking for others who have been through the cavitation surgery to comment with their opinions. Do not worry. No one is looking for a medical opinion, I am fully aware that this is a WEBSITE of non-professionals who are sharing their experiences. Do not worry. Thank you.

You'll get the same answer from most dentists because they all have identical training. I couldn't get anyone to address my problem. You could see where infection had eaten a hole around the bone when I my horizontally impacted wisdom tooth, but I was told things like, as long as there is no puss (presumably they figured no infection), it would be fine. Even a holistic dentist who I saw who had read the book root canal cover up, basically had no idea. Looking back the problem was obvious, but when you have a knowledge level of zero on the subject it's not so obvious, and that's the problem with dentists, or their training.

Even though the condition exists in the medical literature, the fact it's not mainstream means there is no official best way to treat these bone lesions. As a result you'll get alternate dentists basically stabbing in the dark, with homeopathic remedies and ozone injections and other crazy treatments. Really a necrotic lesion is a gangrene infection, and must be physically cut out. The trick is to get the area to heal, before the infection comes back. And there in lies the other problem with cavitation surgery, the failure rate. Maybe up to 50% fail.
 

Jonathan Edwards

"Gibberish"
Messages
5,256
Yes, Jonathan I have seen many many dentists. I am completely aware of the purpose of this forum and looking for others who have been through the cavitation surgery to comment with their opinions. Do not worry. No one is looking for a medical opinion, I am fully aware that this is a WEBSITE of non-professionals who are sharing their experiences. Do not worry. Thank you.

Dear colette,
The purpose of this forum is NOT to provide opinions on things like x-rays, which should come from qualified professionals. You ARE looking for a medical, or at least radiological opinion. I do worry because you are most likely to get responses here that are misleading. I have a reasonably good idea of what your x-ray shows and it does not seem to bear much relation to what has been suggested. I am not a radiologist, however, so would leave the opinion to a radiologist or good dentist. The answer seems to me to have nothing to do with ME so, with respect, I do not think this is the right forum for your enquiry.