Sushi
Moderation Resource Albuquerque
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Hi Everybody,
Some of my ME/CFS friends here in New Mexico have just successfully organized a Mountain Bike Race to fund ME/CFS research. These are patients who themselves used to avidly ride bikes and saw this as an opportunity for "healthy riders" to help fund research by participating a really good race. It drew riders from all over the world and raised $10,000 for ME/CFS research!
It is now an annual event called 24 Hours in the Enchanted? Forest: A Race to Solve CFS!. It not only raised funds but awareness! Something just as important. Suzanne Vernon attended and you will see her speaking on the video I am about to link.
This video is intended for the riders and other "healthies," so the speed of some of the frames might bother some of us who respond to visual stimulation. Just close your eyes for a minute--it is worth it to see what a handful of patients have done (and will do next year too) for research and awareness.
One of the first people you will see interviewed is Claudia Goodell, my neighbor here in Albuquerque. Ken Holmes, also from Albuquerque did the video using his own taping as well as footage from the head-cams of some of the riders. Ken says he had to trade his mountain bike in for a mobility scooter, but he and Claudia are "out-there" doing advocacy and having a lot of fun too.
Here is the video--please post it anywhere appropriate.
http://www.youtube.com/watch?v=ZDMr2ChSYWg
I am an avid ex-biker myself, so this one is close to my heart.
Sushi
Some of my ME/CFS friends here in New Mexico have just successfully organized a Mountain Bike Race to fund ME/CFS research. These are patients who themselves used to avidly ride bikes and saw this as an opportunity for "healthy riders" to help fund research by participating a really good race. It drew riders from all over the world and raised $10,000 for ME/CFS research!
It is now an annual event called 24 Hours in the Enchanted? Forest: A Race to Solve CFS!. It not only raised funds but awareness! Something just as important. Suzanne Vernon attended and you will see her speaking on the video I am about to link.
This video is intended for the riders and other "healthies," so the speed of some of the frames might bother some of us who respond to visual stimulation. Just close your eyes for a minute--it is worth it to see what a handful of patients have done (and will do next year too) for research and awareness.
One of the first people you will see interviewed is Claudia Goodell, my neighbor here in Albuquerque. Ken Holmes, also from Albuquerque did the video using his own taping as well as footage from the head-cams of some of the riders. Ken says he had to trade his mountain bike in for a mobility scooter, but he and Claudia are "out-there" doing advocacy and having a lot of fun too.
Here is the video--please post it anywhere appropriate.
http://www.youtube.com/watch?v=ZDMr2ChSYWg
I am an avid ex-biker myself, so this one is close to my heart.
Sushi