ME/CFS a cardiovascular disease - Dr Claire Taylor

Mary

Mary

Moderator Resource
Messages
18,132
Location
Texas Hill Country
The 4th tweet into the string mentions Arnold Peckerman's paper
Abnormal impedance cardiography predicts symptom severity in chronic fatigue syndrome - PubMed (nih.gov)

I had 2 impedance cardiographies done around 2005-2007 I think and both were significantly abnormal, along the lines predicted by Peckerman. But I believe the devices and testing are very hard if not impossible to find now. But as @BrightCandle said, another biomarker that has gone ignored. It wasn't ignored by my doctor at the time - he was remarkably prescient and aware - but unfortunately died several years ago.
 
K

kushami

Senior Member
Messages
668
Dr Frans Visser talks about his cardiological findings in ME/CFS patients in these short lectures (English subtitles).

 
D

Donsboig

Messages
89
Location
UK
It's a good thread. I was diagnosed with me/cfs, had many tests and tried many supplements for about 4 years before I diagnosed myself with POTS, had it confirmed by a cardiologist, and have had significant benefits from the POTS medication.

I wish one of the 30 or so specialists I saw had mentioned POTS. I was telling everyone I struggled to be upright but nobody thought: POTS. It's crazy
 
F

Florida Guy

Senior Member
Messages
324
I had arrhythmia diagnosed years before cfs symptoms came. I also noticed generally low energy. I had brain fog already from chemo I had to take so I had a head start on cfs, in a sense. I wonder if other diseases or conditions can make people more susceptible to cfs? A number of patients were triggered into symptoms from an infection they had. Maybe each disease wears you down a little more and then some stressor triggers you into the me/cfs state?

Since the nervous system seems to be involved its not surprising that people might have irregular signals to the heart. I think its good to discover that you don't have 6 or 7 different problems but they are all caused by the same thing. Instead of having to fix each one, just fix the cause and they all get better.
 
mermaid

mermaid

Senior Member
Messages
724
Location
UK
I was diagnosed with ME/CFS in 2008, now aged 72. During this year I have had a couple of spells of 'funny turns' and feeling unwell and with some different symptoms alongside feeling very fatigued. I just assumed that I had had an ME relapse, due first to a virus in Jan/Feb, and then pushing myself too hard in late May. I also wondered if it was due to low BP, so persuaded a GP to send me for an ECG (EKG in the US?).

It seems it was likely not low BP after all, as my BP was normal, and maybe my machine is wrong, despite sending it back to the manufacturer who said it was 'normal' .

However, the ECG showed that it was abnormal and I have a heart 'block' which is not a blockage, but a problem with the electrics system in the heart, or otherwise known as a conductor disorder. So my left ventricle's nervous system I think, doesn't fire at the right time in conjunction with the other side, or something like that, or it could be a bit slow. I am seeing the GP on Tuesday to discuss, and maybe she will send me for an echocardiogram, to see if anything in particular in the heart is affected.

I do know that some people don't have symptoms, but I worry that I DO have symptoms, or sometimes at least, especially fatigue, and I wonder if my so-called ME has been this issue all along, though i do know that this particular heart block tends to affect older people, so it's possible that the 2 are not connected.
 
You must log in or register to reply here.
Back