ME/CFS a cardiovascular disease - Dr Claire Taylor

[Consul]

I thought this twitter thread was interresting, theres 25+ posts.

https://twitter.com/i/web/status/1626397450628915201

 

[BrightCandle]

For so many things proven to be wrong in ME/CFS and Long Covid bodies its astounding the lack of diagnosis and treatment. Just another biomarker to add to the list (a historical one and quite old at that) of things doctors wont use.

 

[Mary]

The 4th tweet into the string mentions Arnold Peckerman's paper
Abnormal impedance cardiography predicts symptom severity in chronic fatigue syndrome - PubMed (nih.gov)

I had 2 impedance cardiographies done around 2005-2007 I think and both were significantly abnormal, along the lines predicted by Peckerman. But I believe the devices and testing are very hard if not impossible to find now. But as @BrightCandle said, another biomarker that has gone ignored. It wasn't ignored by my doctor at the time - he was remarkably prescient and aware - but unfortunately died several years ago.

 

[Oliver3]

This is such hopeful news.........not

 

[Judee]

I've always felt like this disease has affected my heart.

Edit: New PC said she would give me a referral to a local dysautonomia clinic. I just don't have the energy to do something like that at this point.

 

[junkcrap50]

I learned a few things from this thread. I never thought I ha POTS until I got a fitbit. But I guess I will have to take it more seriously now.