Hey folks, here’s a place to post your MCAS safe-food wisdom!
I’m finally starting to get a handle on my MCAS food and skin product sensitivities… it’s blowing my mind how many things I react to, but also how much better I can feel when I stick to safe foods/products. While I’ve heard folks mention their MCAS elimination diets on other threads, I haven’t found a thread devoted to the monumental task so here we go. Please redirect me if I’ve missed anything that already exists.
I’ve been working with a dietician lately and I’ve also found www.mastcell360.com to be a good spot to find info. The website goes into more detail than your average low-histamine food list, helpful for me because I suspect I also have oxalate and lectin issues. Between the dietician and Beth at Mast Cell 360, I’ve finally been able to create a list of about 40 foods that I DON’T REACT TO AT ALL!!! And I have another 30 foods that I plan to try over time. I had no idea how many of my symptoms were food-related because I never felt well enough to tell the difference. Can you tell I’m flabbergasted?
I’ve been severely ill and bedbound since I got sick in 2019. In the last couple of weeks, I’ve actually had a few days where I’ve been able to stick to my safe foods list and gone all day without pain, racing heart, shortness of breath, nausea or light/sound sensitivity. And I had 2 PEM episodes recently that only lasted only 24 hours, much better than the 5-7 day PEM average of my last 6 months.
I have a long way to go and the work of an elimination diet does feel pretty overwhelming. I still have foods I have to eat almost daily that trigger me. It’s hard work to find enough other things to eat especially as I’m dependent on caregivers. And I’m looking into MCAS-safe skin care products too. Looking forward to learning from whatever else gets posted here!
I’m finally starting to get a handle on my MCAS food and skin product sensitivities… it’s blowing my mind how many things I react to, but also how much better I can feel when I stick to safe foods/products. While I’ve heard folks mention their MCAS elimination diets on other threads, I haven’t found a thread devoted to the monumental task so here we go. Please redirect me if I’ve missed anything that already exists.
I’ve been working with a dietician lately and I’ve also found www.mastcell360.com to be a good spot to find info. The website goes into more detail than your average low-histamine food list, helpful for me because I suspect I also have oxalate and lectin issues. Between the dietician and Beth at Mast Cell 360, I’ve finally been able to create a list of about 40 foods that I DON’T REACT TO AT ALL!!! And I have another 30 foods that I plan to try over time. I had no idea how many of my symptoms were food-related because I never felt well enough to tell the difference. Can you tell I’m flabbergasted?
I’ve been severely ill and bedbound since I got sick in 2019. In the last couple of weeks, I’ve actually had a few days where I’ve been able to stick to my safe foods list and gone all day without pain, racing heart, shortness of breath, nausea or light/sound sensitivity. And I had 2 PEM episodes recently that only lasted only 24 hours, much better than the 5-7 day PEM average of my last 6 months.
I have a long way to go and the work of an elimination diet does feel pretty overwhelming. I still have foods I have to eat almost daily that trigger me. It’s hard work to find enough other things to eat especially as I’m dependent on caregivers. And I’m looking into MCAS-safe skin care products too. Looking forward to learning from whatever else gets posted here!