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Has LDN helped you with your MCS, Anyone?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Low-dose naltrexone (LDN) - how's it working for you?
- Thread starter jace
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Florida Guy
Senior Member
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I took ldn years ago long before cfs, it probably has been 15 years or so ago. It was supposed to do wonderful things for me. All it did was make my insomnia get a lot worse and its bad to this day so I'm not going to try that again
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Tried LDN a year and a half ago. Was on it for around three months, but had to stop due to bad nausea that it was giving me. It also enhanced the smells of things to a gross degree and sadly still can't handle some types of honey cause it keeps reminding me of how bad it smelt. Outside of that, It did absolutely nothing for my fatigue and other symptoms. Was on 4.5mg.
I thought I was starting NAC this week, then put it aside for a few days due to nausea. Then I suddenly remembered I could start LDN.
Yay!
But, after the first dose last night, I’ve got nausea again. Should I lower my dose?
Edit: Answering own question. Will give it a day and then try lower dose.
Yay!
But, after the first dose last night, I’ve got nausea again. Should I lower my dose?
Edit: Answering own question. Will give it a day and then try lower dose.
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