Long-term daily mHBOT and full recoveries w/ ongoing maintenance

Peyt

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The other company is offering the Newlife (AIR NL-10 Oxygen Concentrator)
Can anyone explain what is considered good quality Concentrator? My use is for 1 person so I don't think I need the dual flow.
 

Peyt

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I supplement with an oxygen mask. But I use a higher quality non-rebreather mask. Not the simple ambulance masks that you can find on amazon. I use this apparatus but I bought a more comfortable and better fitting mask with a strap. It essentially provides 100% oxygen.

http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit


A face mask part more like this. Essentially this setup.


This link talks more about non-rebreather EWOT masks: http://biotoxinjourney.com/the-case-for-mild-hbot/#Masks_038_Cannulas
@junkcrap50
I just got my mask(same as the one you mentioned above). I did not get a strap with the mask. Did you buy that separately or did yours come with a strap??
 

junkcrap50

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@junkcrap50
I just got my mask(same as the one you mentioned above). I did not get a strap with the mask. Did you buy that separately or did yours come with a strap??
No. It does not come with a mask. For cluster headaches, you just hold it to your mouth. I happened to have a CPAP mask strap that fit holding it, but you can buy an strap for it. You want to search for "anesthesia mask strap".
 

Peyt

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No. It does not come with a mask. For cluster headaches, you just hold it to your mouth. I happened to have a CPAP mask strap that fit holding it, but you can buy an strap for it. You want to search for "anesthesia mask strap".
Can you please post the link for strap? I can't find any.
 

junkcrap50

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He currently has the intensity 10 liter. How can you tell which concentrators are capable of pumping oxygen into the mask despite backpressure from the chamber?
The other company is offering the Newlife (AIR NL-10 Oxygen Concentrator)
Can anyone explain what is considered good quality Concentrator? My use is for 1 person so I don't think I need the dual flow.
The Newlife Air NL10 concentrater is a good quality concentrator. As for which concentrator is capable of pumping into the chamber despite back pressure, you have to just look up the specs of any particular concentrator. Try to find the output/outlet pressure. It just has to be higher than the pressure of the tank, which is 7-9psi. I would obviously try and find one who's outlet pressure is significantly higher. The AIR NL-10 (according here: https://www.oxygenconcentratorstore.com/airsep-intensity-10/) has an output pressure of 20psi, which is great.

I would also go with a 10L/min concentrator. If you use a non-rebreather mask, you will need a 10L/min concentrator to keep up with you breathing volume. 10L just nearly covers my breathing volume. If i take deep breaths, it can't keep up. If I breath normally and take time to "calm down", it keeps up no problem.
 

Peyt

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Just wanted to give an update. I have been using the HBOT unit for about 10 days now. So far, the only improvement I have noticed is my headaches are gone. But this in itself is a big deal for me.
My headaches are as a result of poor blood flow to the head. I had a cranial doppler test done with a tilt table test less than a year ago which showed when I stand up for more than 10 minutes the blood flow to my head drops by 39% (measured by the drop in RMCA velocity) ... My guess is that the blood flow is the same but since it's more oxygenated its helping with the headaches.. But my heart rate is still fast and has not been helped so far. I hope to report more benefits in the future.
 
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Has anyone gotten a blotchy rash as a result from HBOT?

I tried HBOT (pressure 2x) for my first time last week and came out with what the doctor said was livedo reticularis. Wondering if that response is due to EDS, herx, other reason...very curious to hear others' thoughts. Thank you!
 

Peyt

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Has anyone gotten a blotchy rash as a result from HBOT?

I tried HBOT (pressure 2x) for my first time last week and came out with what the doctor said was livedo reticularis. Wondering if that response is due to EDS, herx, other reason...very curious to hear others' thoughts. Thank you!
I don't think that is a cause of trying Oxygen chamber itself.
Did you try this at a public place? Is livedo reticularis something that could be contracted?
The only thing I can think of is that this was a public place and the person who used the chamber before you had this rash and they did not clean the chamber prior to letting you use it... My experience with my oxygen chamber at home is been that any change happens very slowly (after at least 5-7 sessions).. I don't see how it could happen after just 1 session.
 

NotThisGuy

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for the people looking for more affordable and high quality chambers:
I have heard only good things from MACY-PAN.
You can contact their salesman on facebook here:
https://www.facebook.com/rank.yin.5

or mail here:
rank@macy-pan.com

A 1.3 ATA chamber with cooler, compressor and 5L oxygen concentrator costs 4800 USD.
They also offer optional 1.4 ATA and 10L oxygen concentrator.
People report that it has a higher quality than Summit2Sea it especially doesnt have this smelly off gasing, which is probably a good thing for all the MCS and MCAS people here.
Someone with MCS reported that he doesnt get any symptoms using this chamber.
They also have 1 year warranty or optional 2 year warranty and if the chamber breaks they just send you a new one. you just have to pay for the shipping again.
Which again is better than summit2sea who will try to alway repair it which led to a lot of frustration by many users.

I'm going to buy one from them very soon myself.

Edit: obvs I dont get any money or anything for advertising this.
I will also give you guys a review about the chamber as soon as I have it.

edit2: if you are in the UK you cant order a MACY-PAN from china, because they have their exclusive reseller in the UK:
https://henshawhyperbarics.co.uk/product/henshaw1662/

its absolutely insane that the UK shop wants 21000 USD for the same chamber that costs just 4800 USD in china...
 
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Wayne

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Has anyone gotten a blotchy rash as a result from HBOT?
I don't know if this would be connected, but I noticed in the beginning of doing mHBOT that my face would often become quite flushed for up to a couple hours after doing a session. As time went by, I noticed it less and less, and now rarely happens.

Regarding my facial skin, shortly after beginning mHBOT last fall, I noticed a number of age spots lightened by as much as 75%+. Then the past couple of weeks or so, I've noticed that my face definitely looks healthier, and has made me look a bit younger. -- I'd rather feel younger than look younger however. :rolleyes: :)

I am concerned about the oxygen delivery. Any thoughts?
Just to mention, I did a handful of mHBOT sessions at a local ND's office, and he didn't even use supplemental oxygen. He said he was getting very good results with his patients with just the pressure alone, because it can increase oxyen concentrations in the body without supplemental oxygen. I did feel I got benefits from it, but not as much as when I had oxygen from a concentrator.
 

Learner1

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I noticed a number of age spots lightened by as much as 75%+.
I ama fair skinned but have always tanned fairly easily, not burned. But I accumulated age sports on my arms and legs over the years. I'm evaluating them closely right now, and they are fewer and lighter overall. (I do still have a couple of dark spots, which are as dark as all of them used to be, so I can tell there's a real difference.)
Just to mention, I did a handful of mHBOT sessions at a local ND's office, and he didn't even use supplemental oxygen. He said he was getting very good results with his patients with just the pressure alone, because it can increase oxyen concentrations in the body without supplemental oxygen. I did feel I got benefits from it, but not as much as when I had oxygen from a concentrator.
I agree. The easiest thing would be to buy your own mask that you can plug into the HBOT near the head.
 

used_to_race

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for the people looking for more affordable and high quality chambers:
I have heard only good things from MACY-PAN.
You can contact their salesman on facebook here:
https://www.facebook.com/rank.yin.5

or mail here:
rank@macy-pan.com

A 1.3 ATA chamber with cooler, compressor and 5L oxygen concentrator costs 4800 USD.
They also offer optional 1.4 ATA and 10L oxygen concentrator.
People report that it has a higher quality than Summit2Sea it especially doesnt have this smelly off gasing, which is probably a good thing for all the MCS and MCAS people here.
Someone with MCS reported that he doesnt get any symptoms using this chamber.
They also have 1 year warranty or optional 2 year warranty and if the chamber breaks they just send you a new one. you just have to pay for the shipping again.
Which again is better than summit2sea who will try to alway repair it which led to a lot of frustration by many users.

I'm going to buy one from them very soon myself.
That seems like a really good deal. I browsed the guy's facebook and the chambers look to be of good quality and are aesthetically very similar to the OxyHealth units. Probably a "clone" so to speak. Considering you can get a used Vitaeris 320 on ebay for like $8k, getting a new setup that is comparable in form and function for about half that is a pretty good deal. If I didn't already own a Vitaeris I'd be in touch with these guys in a heartbeat. Keep us updated on your progress!

As an aside, I posted about how I had been doing better with HBOT, Plaquenil, and probiotics about 6 months ago. I am still doing quite well. I added Florinef into my regimen in December 2018 which helped a lot with my POTS symptoms (must have been hypovolemic). I play soccer 3-4 times a week and have an almost normal life at this point. Still constant sore throat, mild to moderate intermittent GI symptoms and periods of fatigue but I can push through it. Life is pretty good.
 

used_to_race

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This is a mistake that many on this site have made and regretted. Hope you're not overdoing it... how come your sore throat doesn't go away? I do exercise too, but I manage the symptoms and support my body to do it. (HBOT is definitely such a strategy, but there are a few others....)
I'm not saying I go out and run 10 miles if I'm having a bad day. But if I'm not feeling great, I can still run errands, cook, walk the dog, go to work and be mildly productive (maybe not all in the same day), that kind of thing. I can't speak for anyone else, but for me, it seems that I don't need complete bed rest if I'm not on a good day. A quick midday nap is always good though.

I sometimes do worry that I'm cumulatively overdoing it, but it's been 6 months now that I've had this lifestyle and it seems sustainable. Maybe I'll regret it in the 2-5 year range, but then we will be that many years closer to effective treatment. I basically live like a normal mid-20s guy, and I think I will look back on this as a positive even if it means a temporary setback later on after research has progressed.

No idea why the sore throat doesn't go away. Nobody knows what causes it at a cellular/molecular level as far as I can tell. Prednisone didn't knock it out, so I don't think it's an inflammatory process in a strict sense. ENT and rheumatologist, both great doctors, had no idea what it could be. I guess it could be infectious, but trials of oxymatrine and valtrex didn't help with it either. Haven't tried antibiotics and probably won't unless some hard evidence comes out. It could be due to air quality in LA, but I don't have any plans to go to Hawaii anytime soon.

And @Learner1, I know a couple rowers who wouldn't call dragon boating "exercise" ;), but they're probably not as tenacious as you are on the whole.
 

Learner1

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ENT and rheumatologist, both great doctors, had no idea what it could be. I guess it could be infectious, but trials of oxymatrine and valtrex didn't help with it either. Haven't tried antibiotics and probably won't unless some hard evidence comes out.
It is unlikely that nothing is causing a sore throat. That sounds suspicious...

I had no help from EENT, rheumatologist, and infectious disease specialists. But after testing and treatment from my ME/CFS specialist, which has included LDN, Valcyte, azithromycin, rifampin, doxycycline, and IVIG over 2 years, for problems the other doctors couldn't manage to find, my lymph nodes are finally not swollen all the time.

Maybe this might be worth exploring:

https://fox59.com/2019/06/12/new-gene-tests-for-germs-quickly-reveal-source-of-infections/

I also know a couple of patients that had chronic systemic infections emanating from wisdom teeth extractions and other dental issues that were quite surpridin as the patienrs didnt think it could be the cause.
And @Learner1, I know a couple rowers who wouldn't call dragon boating "exercise" ;), but they're probably not as tenacious as you are on the whole.
I carpool with an 83 year old who's had 3 kinds of cancer who I can't keep up with and nap in the boat. But sometimes, I feel almost normal....and I take NAD+, hydrocortisone, thyroid, glutathione, and BCAAs to support it. It's aerobic exercise which is extremely difficult. But, its soul feeding to be out on the water...
 

Wayne

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I guess it could be infectious, but trials of oxymatrine and valtrex didn't help with it either. Haven't tried antibiotics and probably won't unless some hard evidence comes out.
Hi @used_to_race -- I get occasional (but regular) low-grade sore throat feelings, and see evidence of it being both infectious and structural (I've got lots of symptoms that point to CCI/AAI). One thing I started doing recently is inhaling a very diluted hydrogen peroxide mist.

I definitely noticed a positive shift right away, so I continued doing a short inhalation about once a day. I can't tell for sure if it's conitnuing to support my body, but I do it anyway, as it just "feels good". Plus, I just think it's good as a preventative measure against potential colds/flus settling into my system

In case you'd be interested, below is a link to a 7-Minute Youtube video describing the H2O2 inhalation method for viruses, etc.. Below that link is an edited version of an interesting testimonial on that Youtube page. -- Here's a link to the EarthClinic article entitled HydrogenPeroxide Inhalation Method by Bill Munro, which has about 685 comments.

Most of the recommendations I've seen are to use regular store bought 3% H2O2, but some people (like me) don't like that it has various kinds of unnatural preservatives or stabilizers in it. A few have said that 3% is too strong. So I decided to do a 1% version instead of the 3%, and test the waters with that.

I myself buy 35% food grade H2O2, and use it for a variety of things. To use that to make a 1% H2O2 solution, I just take an ounce of it, and add it to 1 quart of purified water. Since the 1% solution has been so benign so far, I'm getting ready to try a 1.5% solution. To make that, I'll just add an extra half ounce to a quart of water. Who knows, maybe I'll try 3% sometime, which of course would be 3 oz. 35% H2O2 mixed with a quarter of water. -- Just below is the link to that 7-min. video.
................................................................................

Learn The Right Way To Do Hydrogen Peroxide Inhalation Method For Viruses, COPD, Congestion

.................................................................

Here's that (intriguing) testimonial I mentioned above, which was just below the above video on YouTube:

I had Lyme/bartinella in my spinal fluid and my doctor treated me with two years straight of intravenous antibiotics followed by two more years of an oral cocktail of antibiotics before he stoped and gave me a year to live. To make a long complicated story short it came to me that all diseases are common in that they are simply all parasites so I read all about them. I found they live only in low air or oxygen environments and highly acidic bodies.

Two days later a voice in my head said inhale peroxide so I did and in just under two weeks of me inhaling it with this ecpxat method shown here, about every two or three hours or every twenty minutes day and night. I had the dieoff and I was not only cured of this disease, but apparently something else. I have no idea what it was or to name it that plagued me from birth with nail biting, bad spelling, bad focus, bad math and what we now call ADD and after my use, all that disappeared and was corrected, it just happened instantly by itself.

The die off of large amounts of bacteria dumping so rapidly Into the kidneys caused it to inflame for two days and that’s when the treatment should be stopped for approximately two days to let the toxins clear and once the pain in the back lower side s gone it’s vital to immediately go back to inhaling to get the residuals before they rapidly breed again. It’s important to let the kidneys clear or the overload will kill the kidneys. If you stop when the pain starts then it’s not at all somthing to worry about. I had both these things happen to me.

I’m inhaling Store bought 3% peroxide right now once again for almost two weeks because of diseases that hit me after an accident and yet again I’m getting great results and a man that came to me nine years ago that was given two years to live because of his brain tumors is alive today because I had him inhale peroxide and some colloidal silver I made him with distilled water and an agitator to make it nano. This stuff is all awesome and works for real people.

I’ve helped many more over the years and all had great success except one that had weak breathing and can’t inhale deeply because of a lifetime of smoking. Deep and frequent inhaling is the key here this showed me. Best of luck to you all. You’ve found a gold mine here as it can cure anything as long as the circulation is adequate in the zone of the disease and if not then there is only one way to fix it fast and that is to only eat raw food to bring down the inflammation fast in just days. This also will cure things because of that action alone all by itself.

To kill the hunger causing parasites use dmso and crystal yellow sulfur or get those things from eating cabbage that’s high in those things three times a day like a medicine and when you get gassy that is the parasites dying and when they are dead the eggs, broccoli and cabbage will not make you gassy anymore because it was just killing the hunger causing parasites that cause hunger and diseases also.
 
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used_to_race

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Hi @used_to_race -- I get occasional (but regular) low-grade sore throat feelings, and see evidence of it being both infectious and structural (I've got lots of symptoms that point to CCI/AAI). One thing I started doing recently is inhaling a very diluted hydrogen peroxide mist.
Thanks, but this seems rather risky and not well-studied by a credible entity.
 

Wayne

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Thanks, but this seems rather risky and not well-studied by a credible entity.
@used_to_race -- You're correct that it hasn't been well studied, but I would not categorize it as risky. I've tried many therapies that were not well studied, but found many of them helped me a lot. I just very carefully weighed the risk/reward ratio, and started out very slowly. Of all the things I've tried in this category, hydrogen peroxide inhalation seemed about the least risky, and it did ended up clearing up a chronic low-grade wheezing in my lungs.

Other well-studies therapies that doctors might have recommended--like antibiotics--almost always seem to have very serious potential side effects, such as tinnitus, hearing loss, opportunistic infections, death, widespread and chronic life-long ligament damage, etc. The choice in these cases is pretty easy for me. But that's just my own orientation. Everybody has to do what feels right for them.