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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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lobbying on 21st Century Cures Act


Senior Member
SF Bay Area
The 21st Century Cures Act has just passed the House and moving to the Senate. This is a chance to add funding for ME similar to what has been added for tick-borne diseases.

I just wanted to write a quick post to see if there is anyone lobbying for ME patients in Congress. I am 99.9% certain the answer is no, but I wanted to confirm. @Nielk- is ME Advocacy doing any lobbying on this Act? Anyone else aware of any initiatives?

Thanks all.