Thanks for your feedback
@lenora I hope you manage to find something to help your own sleep issues. I feel sleep and ME/CFS have an intimate relationship somehow. But I haven't a clue what.
Sometimes -sure -it's pain or illness which disturbs sleep. But I actually sleep well and soundly. Whatever I have isn't enough to wake me up.
Now the oddest thing is I often did used to get some version of insomnia (couldn't fall asleep until early morning) but at that time I felt very well. No ME/CFS.
And when the illness began my sleep problems seemed solved. I have never slept so well for a long time. I do not take any sleep medication or even melatonin. Sadly, I even thought that brilliant sleep would help me "heal" quicker.
But the weird thing is I can feel totally "normal" the day after getting no sleep at all !! No symptoms, no crash. Just like my normal (albeit tired) self. This doesn't happen all the time, but has happened maybe 95% of the time. And the next night I will get 10 hours sleep and feel good that following day too 95% of the time. Like my normal self.
Another odd thing is when I wake up (now) remembering a vivid -even pleasant -dream, I always feel unwell during that day.
That's a whole new thing associated with ME/CFS.
It's a bit of a mystery.