Your grasping for straws, we can either give you some or you can accept that you have this condition. Those are the available options at this time.
I know its scary but we don't have any rabbits to pull out of hats, we all want this thing cured or at least a treatment found, but right now the reality is we are here but we have better prospects then we did a few years ago, the OMF is doing great work and making progress and we hope that leads to a treatment.
Its not easy to accept a serious diagnosis but driving yourself crazy is not going to make you better. At this point all you can do is adapt, when your ready.