Yet another person I know, who was certain they had m.e. has now being officially diagnosed with Ehlers Danlos Syndrome.
Another good friend I went to school with has HEDS. His symptoms are identical to mine except he is hypermobile.
There have been lots of new variations of EDS discovered over the last decade.
Are we just looking at fibro/ m.e. even Lyme's disease being an as yet undiagnosed expression of ehlers danlos syndrome
Countless with ME/CFS have EDS types & the majority of ME/CFS have not been seen by EDS Doctors...I have said countless times what is ME/CFS Lyme EDS they are all names, labels & I am also seeing many now also being told they have porphyria types...
EDS genetic panels are rarely done & the same goes for porphyria as well...One will also see countless assume they have mold yet there is no proof mold is any cause of ME/CFS Lyme EDS. Ehlers Danlos was named after 2 Doctors.
There is a newer type criteria called HSD Hypermobility Spectrum Disorder...EDS 3 & HSD have no genetic tests. Stiff Person Syndrome is another illness being found in many with a diagnosis of ME/CFS...What is ME/CFS??? Another label name