Hi everyone.
I d just like to take the time to clear up a few things because there appears to be some misunderstandings about where Im coming from, and what Im trying to say.
Firstly in no way Im I trying to imply that anyone is any more or less sick than anyone else! Quite the contrary Im trying to raise awareness that there are a lot of people at risk of dying because of the misunderstandings that have been created by the false information put out by the likes of the CDC and the Wessely school.
The impression Im getting is that there is a belief that, there are three people writing in this tread who have ME as defined in the Ramsey and the Nightingale definition, who are trying to explain what ME is and that some people are getting upset and feeling that this is in some way demeaning their suffering.
This is not the case, I do not have ME!! Or CFS, ME/CFS, CFS/ME CFIDS, IBS or Fibromyalgia; I am one of the Misdiagnosed!!!! Who has lost two decades of my life and been through an incredible amount of pain and suffering due to over 25 ignorant doctors, including several self proclaimed CFS expert doctors and the specialist ME CFS unit at a major Hospital, sticking these labels on me, while ignoring failed test results and symptoms, because they were too lazy to do their jobs properly, and instead stuck me with a ME/CFS/IBS/fibro waste basket diagnosis.
The reason Im trying as best I can, to explain what ME is, and how the information has been deliberately suppressed. And there are major faults in all the CFS definitions including the CCC that are causing people to get misdiagnosed, (I have over 30 of the symptoms mentioned in the CCC including the 4 main qualifying criteria Fatigue, PEM, Sleep and pain). And that the CDC knew it was ME at Lake Tahoe and covered it up by creating CFS.
Is because knowing this information helps people no matter what is actually wrong with them. And a lot of people if they take the time to read the information will see that their diagnosis is at best very questionable and what theyre being told by the likes if the CDC and Wessely School is nothing but a pack of lies. It is by researching these things that I have been able to overturn my previous false diagnosis and have a chance of hopefully getting some sort of life back. I would like other people to have this opportunity as well, and theres no way I can just get on with my life and not try and explain what I know to people. ME is a very different disease than what it has been portrayed as since the lies of the CDC and Wessely school started in 1988, because of this all research into ME has stopped, the people with it need help, they need the world to know what it is, so people will start looking for treatments for them.
Everybody is being lied to on an epic scale by the people and that are claiming to help them, the amount of false information that is being deliberately put out and has been for decades is unbelievable.
Because of the advent of the internet a lot of information is becoming available that was previously stuck in dusty achieves around the world, these archives are being digitized and people are spending a lot of time scanning the information and making it available on the net, and in the process articles that nobody ever thought the public would see are becoming freely available.
Ill try and give a brief description of some of the things Ive found out which will hopefully help people see where Im coming from.
CFS was, as Im sure most people know created by the CDC because of what happened at Lake Tahoe in 1984-1985. Sorry I dont have the time or energy to write this all up in full at the moment, but the CDCs own published writing from the time proves that it was ME as defined in all the old literature at Tahoe. The CDC knew that Dr Cheney had paid to get MRI scans for the patients at Tahoe and that these had showed liaisons similar to AIDS patients. The CDC knew this before they invented CFS in the Holmes definition and conveniently forgot to mention it.
By the CDC own admission they read extensively the old literature on ME at the time of the Lake Tahoe epidemic and include it in the references in their 1987 investigation of the Lake Tahoe Epidemic written by Dr Holmes and several of the other writers of the 1988 Holmes definition that invented CFS.
The material that they read showed that ME is highly contagious, had a sudden acute onset, had always caused major epidemics, often left people damaged for life, was so similar to Polio that it was often referred to in the past as Atypical Poliomyelitis, that it had a 4-7 day incubation period, that it caused extensive damage to the central nervous system and what all the symptoms were, that the infectious agent could be transferred from ME patients to Monkeys and that the Monkeys would then get very sick and extensive damage was then able to be found when the Monkeys were autopsied and that it had been shown that if people were to have a chance of recovery they needed to be confined to bed often for months after the initial infection had past.
This information the CDC read, had extensive information on what kind of tests ME patients did and didnt pass, and that in a lot of the previous ME epidemics, they were then followed by an epidemic of Polio and the people that had previously been exposed to ME where immune to Polio. All of which they also conveniently forgot to mention in the Holmes CFS definition despite knowing all of this beforehand. And instead invented a disease with the symptoms that are basically those of a chronic EBV infection, and these symptoms have since been watered down in subsequent definitions into a set of symptoms that are indistinguishable from a large number of Psychiatric illnesses. More information on the frankly outrageous behaviour of the CDC at the time and the lies and deceit going on can be found here
http://www.oslersweb.com/the_why___a_speech_in_london_86981.htm
Im sure you will have noticed a lot of references being made to SPECT scans for diagnosing ME in this discussion. Some of the Pioneering work that was done on this that showed that the damage could be measured by SPECT scans, was done by one of the CDC doctors who not only helped write the original CDC Holmes definition but also the CDC Fukuda definition, his work was published in April 1994, the Fukuda definition which he helped write was published on 15 December 1994, and gives instructions not to do SPECT, MRI and PET scans and not to test for Enteroviruses! They have deliberately blocked people from being investigated by proven methods to diagnose the illness.
Among the long list of CDC crimes is stealing millions of dollars of research money for the disease for years and using it as a slush fund to do whatever they wanted with, this went on for years until it was exposed by Hillary Johnson, writer of the book Oslers Web, this then lead to a full federal investigation and the CDC was found guilty, unfortunately William Reeves one of the CDC doctors involved and one of the leading exponents in the USA of the belief that CFS and ME are psychiatric diseases was helped to get protection under the whistle blowers act by the CAA who are supposed to be on our side, and have ensured that he is now in total charge of the CDC investigations into ME and CFS and is bringing GET and CBT into the US, and has written his own definition that has made it look so much like a psychiatric disorder that, research found 40% of people investigated with a CFS diagnosis were found to have major depression instead.
Information about this can be found here
http://www.oslersweb.com/newsletter.htm and here
http://www.oslersweb.com/blog.htm?post=648635
Everybodys favourite Psychiatrist Simon Wessely was contacting Dr Gary Holmes writer of the criteria that invented CFS in 1988 the same year it was invented, one of his letters can be found in the first link above, pushing the idea that its a psychiatric illness.
In another 1989 article he admits to knowing about the Enteroviral connection and dismisses it and tries to imply that everyone with it has a psychiatric disorder.
There are not one but two secret files that have been discovered in the UK, being kept secret for a length of time that is normally only reserved for documents that contain state secrets and information that could bring down governments.
MRC files: Item reference FD 23/4553/1 (Records and correspondence covering the period 1988-1997) Closed for 73 years (ie.until January 2071):
http://www.nationalarchives.gov.uk/...75665&CATLN=7&Highlight=&FullDetails=True&j=1
DWP files: Piece reference BN 141/1 (Refer to "Medical Policy" on ME/CFS, covering the period from 1984 to 1993.) Closed for 78 years (ie. until January 2072)
http://www.nationalarchives.gov.uk/catalogue/displaycataloguedetails.asp?CATLN=6&CATID=8897099
There both being kept secret under the BS excuse that they contain peoples names and they dont want to breach peoples privacy, documents are released all over the world with peoples names and personal details blanked out its standard practice everywhere including the UK!!
Personally I have very little doubt that they contain information on Wessely and co colluding with the CDC to make ME disappear and inventing CFS and portraying it as a psychiatric illness. Because the dates fit, Wessely was in contacted with the CDC at the time, ME has been obliterated from modern medicine and CFS suddenly appeared and is being portrayed as a Psychiatric illness. And to make matters worse their insisting that nobody with these diagnoses get extensively tested to find out whats really wrong with them, which in my opinion is being done for the sole reason that if people where extensively tested and found to be misdiagnosed with a large amount of different diseases, then their heads are going to be in the firing line!!
My feeling is that the CDC and Wessely School have created a monster of a waste basket diagnosis which is catching vast numbers of people with a vast number of different illnesses in its net, ME included and this monster needs to be stopped!!!!
In the recent UK NHS investigation found here
http://www.rcpe.ac.uk/journal/issue/journal_40_4/newton.pdf they found 40% of people who had been diagnosed with CFS had been misdiagnosed. 40% of the estimated 20 million people diagnosed with CFS is 8 million people, this is the biggest medical scandal since Thalidomide!!!! Some of the people in this study were found to have diseases like cancer, hemochromatosis and cardiovascular diseases, these people would have died if they hadnt been discovered, and people are dying all over the world because of being misdiagnosed. To give an idea of what little effort they must of put in to find these misdiagnoses, The only way that they could have not found a single case of Vitamin D deficiency which causes the same symptoms as those attributed to CFS in Northern England where the weather is awful, (Ive lived there I know it first hand) is to not of tested anybody for it.
Other doctors are putting in writing that they are taking the time to intensively investigate their ME/CFS patients and finding far higher misdiagnosis rates then 40%. And I must admit to wondering whats going on with all these so called expert CFS doctors around the world? Why arent they telling everyone about the large numbers of misdiagnosed people they find, if even the doctors from the famously useless NHS can do it. From my experience and from what Ive read about them what theyre doing is charging people obscene amounts of money, doing what Dr Hyde describes as the latest trendy tests e.g. testing for things like NK cell dysfunction, which is found in so many different diseases that its diagnostically useless, and all it tells you is your sick, which you knew before you paid for it, then charge a fortune for a vast array of different supplements etc that never cure anyone. Its a shame really because Dr Hyde reckons it costs about $10,000 at the absolute most for a patient to get every test and scan, SPECT, ultra sound etc to get everyone the correct diagnoses.
I hope people can see what Im trying to say, that there is a large amount of information that is being deliberately suppressed and ignored by the powers that be. I want everyone to know this information because knowing it helps every one. At the moment every one with one of these diagnoses is in the same situation, up shit creek without a paddle! The only solution is to campaign to get things changed based on the true information, the ME people need to be looked at separately and work started to find treatment for them, all the misdiagnosed need to be diagnosed and treated, then and only then if there is anyone left that are suffering from some mysterious diseases that is unknown to science can they be identified and work begun to try and find whats going on. At the moment its being portrayed by the powers that be that everyone has the same disease, so all research is being done on groups of people with different illnesses and coming up with endlessly confusing results, which is just wasting what little money is available, and is a total waste of every bodies time.
I hope that people can see that in no way am I trying to belittle anyones suffering or imply that one group of people are more sick then another. My aim is to try the best I can to provide information to help everyone involved, because youre all being lied to and mistreated in the most disgusting way, by people who are making large amounts of money out of your suffering. I read an article recently that said that what has been happening since 1988 can best be described as Genocide a view that Im in complete agreement with. The reason I keep banging on about misdiagnosis is because its not something thats happening just out in the rest of the world, its happening on this forum, at the end of my post #22 in this tread I have put a list of some of the vast number of failed tests that people have posted on this forum that shows that there are a lot of misdiagnosed people posting here, I want them to be helped, I know what its like to suffer needlessly for decades, its hell on earth and i dont want anybody else to go through it.
Id like to conclude by saying that I view everybody here who gives what little energy they have to help other people and to campaign to try and make a change in this appalling situation that everyone is in, because of the lies and greed of others, with the greatest respect and admiration, all Im trying to do is share knowledge that I have gained over the years to give people a greater chance of success with their endeavours for the benefit of everyone involved!
All the best
