Is Apheresis an effective treatment for Long Covid and ME?

[Irat]

There are a few in our German MCS group who did it with very little success and many side effects as well.

 

[Countrygirl]

Very exciting development, I will watch with interest.
@Countrygirl my beautiful friend ❤ ❤ how have you been? Will dm you when I feel up to writing more

Molly, I thought you had left the planet.

How lovely to hear from you!!

Hope you are hangin' together, or, at least, like the curate's egg, good in parts.

 

[andyguitar]

There are a few in our German MCS group who did it with very little success and many side effects as well.

Do you mean Multiple Chemical Sensitivity?

 

[Martin aka paused||M.E.]

Good luck with it @Martin aka paused||M.E.

Thank you very much Andy !!!

 

[Irat]

Do you mean Multiple Chemical Sensitivity?

Yes,most have cfs too

 

[Martin aka paused||M.E.]

I know I´m intruding here. But, would you pleeeease ask him if it is true that it also take out needed nutrigens? In case of a yes, mabe they are easley replaced? Thank you.

He is not entirely sure but recommends a good diet.

 

[Countrygirl]

Blood Coagul Fibrinolysis

https://pubmed.ncbi.nlm.nih.gov/10695770/

. 1999 Oct;10(7):435-8.
doi: 10.1097/00001721-199910000-00006.
Chronic fatigue syndrome and/or fibromyalgia as a variation of antiphospholipid antibody syndrome: an explanatory model and approach to laboratory diagnosis
D Berg 1, L H Berg, J Couvaras, H Harrison
Affiliations expand

• PMID: 10695770
• DOI: 10.1097/00001721-199910000-00006

Abstract
Chronic Fatigue and/or Fibromyalgia have long been diseases without definition. An explanatory model of coagulation activation has been demonstrated through use of the ISAC panel of five tests, including, Fibrinogen, Prothrombin Fragment 1+2, Thrombin/ AntiThrombin Complexes, Soluble Fibrin Monomer, and Platelet Activation by flow cytometry. These tests show low level coagulation activation from immunoglobulins (Igs) as demonstrated by Anti-B2GPI antibodies, which allows classification of these diseases as a type of antiphospholipid antibody syndrome. The ISAC panel allows testing for diagnosis as well as monitoring for anticoagulation protocols in these patients.
Similar articles

• Activation of the coagulation system in Gulf War Illness: a potential pathophysiologic link with chronic fatigue syndrome. A laboratory approach to diagnosis.
  Hannan KL, Berg DE, Baumzweiger W, Harrison HH, Berg LH, Ramirez R, Nichols D.Blood Coagul Fibrinolysis. 2000 Oct;11(7):673-8. doi: 10.1097/00001721-200010000-00013.PMID: 11085289

 

[SWAlexander]

Resia Pretorius
Following our discovery of microclots in the blood of #LongCovid patients, we are now in search of treatments! Dr Beate Jaeger has been using H.E.L.P Apheresis. We are joining forces! See the full interview on
@BBCNews
with her and
@doctorasadkhan
on

https://twitter.com/i/web/status/1281474483736453120

 

[Countrygirl]

There are a few in our German MCS group who did it with very little success and many side effects as well.

Were they treated by Dr Jaeger? @Irat

 

[perrier]

There are a few in our German MCS group who did it with very little success and many side effects as well.

Thanks for posting. Would you be able to give some more details about what happed to these patients. Thankd

 

[SWAlexander]

He is not entirely sure but recommends a good diet.

Thanks.

 

[perrier]

Here is a definition which might help clarify a little :
Definitions

• Apheresis is the general technique of extracorporeal blood purification whereby one constituent is removed and the remainder is returned to the patient
• removal may involve centrifugation or filtration
• Cytapheresis is removal of cellular components from the blood
• Plasmapheresis is a subset of apheresis whereby plasma is removed; this is termed ‘plasma exchange’ when host plasma discarded and replaced by donor plasma or an alternative colloid

https://litfl.com/apheresis-plasmapheresis-and-plasma-exchange/

------------------------

 

[SWAlexander]

How do you explain to a stubbern 36 y.o. auto-mechanc (in school to make his master) with visable symptoms since May for muscle weekness (arms and legs), that he needs a blood test?

This is how did it.
Your car looks good from the out side. Your car runs well until someone puts a pound of sugar, or something like it, into the tank. What would you do, I asked?
His answer was technical but to the piónt.
Yes I said, and blood is the gasolin for our body. Checking for blood clots, or have at least a D-Dimere test, cannot harm.
Unfortunatly he have not seen a doctor yet and his symptoms getting worse.

 

[SWAlexander]

Here is a definition which might help clarify a little :
Definitions

• Apheresis is the general technique of extracorporeal blood purification whereby one constituent is removed and the remainder is returned to the patient
• removal may involve centrifugation or filtration
• Cytapheresis is removal of cellular components from the blood
• Plasmapheresis is a subset of apheresis whereby plasma is removed; this is termed ‘plasma exchange’ when host plasma discarded and replaced by donor plasma or an alternative colloid

https://litfl.com/apheresis-plasmapheresis-and-plasma-exchange/

------------------------

Accordng to Dr. Beate Jaeger, Apheresis is done in Germany for the last 30 years.

 

[Martin aka paused||M.E.]

Accordng to Dr. Beate Jaeger, Apheresis is done in Germany for the last 30 years.

H.E.L.P. apharesis. She only talks about this special kind

 

[J.G]

This is very exciting. As others have said, "sticky" or "thick" blood is an old finding in MECFS. Wouldn't it be something if a combination of impaired red blood cell deformability and these microclots conspire to impede oxygen exchange in capillaries... For me personally, multiple phlebotomists have commented that my blood is "certainly not thin". Cause, of yet, unknown.

 

[SWAlexander]

H.E.L.P. apharesis. She only talks about this special kind

There was another video where she explained what apharesis was used for 30 or 37 years ago.

 

[Martin aka paused||M.E.]

Dr Khan says that the oxygen saturation was low in his case, and he says that a simple monitor can detect the levels. These monitors cost very little and are available on every amazon. But from having used this monitor on our family member, the saturation was not really in the critical zone as Dr. Khan had.

Is it really the normal pulse O2 oximeter he talks about? Because afaik that’s being used in every clinic so that would have been discovered immediately… in general when you have a very low oxigen level you get intranasal O2 or being referred to the ICU

 

[perrier]

Is it really the normal pulse O2 oximeter he talks about? Because afaik that’s being used in every clinic so that would have been discovered immediately… in general when you have a very low oxigen level you get intranasal O2 or being referred to the ICU

Well, yes, Martin, that is what I am wondering about also. Someone please clarify. Thank you

 

[Irat]

Thanks for posting. Would you be able to give some more details about what happed to these patients. Thankd

Different outcomes.some got relief,some got worse,side effekts are detox symptoms,..but non healed..and the costs for not knowing the outcome are horrendous.but who can afford it,go for it. Same with sanazon therapy,there was a woman on German tv who healed completely with it,and others in our group tried it too,but no success...