Is Apheresis an effective treatment for Long Covid and ME?

[SWAlexander]

I hear yesterday from a doctor that 2 clinics doing plasmapheresis are opening up, one in New York and one in California. If anyone has further info please. post.

Is this what Dr. Scheibenbogen was doing????

I believe apheresis is posible in every UNI-Clinik-lab that provides dialysis.

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[Countrygirl]

Can anyone find the papers from either the 80s or 90s which claimed that we had 'sticky' blood, please?

I know MERUK published two papers which revealed that the endothelium of our blood vessels was severely damaged while others described how our red blood cells are too rigid to pass through the capillaries.

When I had some genetic testing a year ago, they notified me that I was prone to a blood clotting disorder. I have been having superficial blood clots blocking blood vessels since I was 15, and in recent years TIAs and strokes.

I wonder if others had such evidence of having 'sticky' blood, Hughes Syndrome/Antiphospholipid Syndrome?

 

[Countrygirl]

I believe apheresis is posible in every UNI-Clinik-lab that provides dialysis.

.

I am told plasmapheresis is a different process to what is happening in Germany.

 

[SWAlexander]

Not that it is any comfort to patients, but 1300 euros is actually a pretty "decent" price compared to plasmapheresis or apheresis in the U.S.

Btw in case anyone else is wondering, "H.E.L.P. Apheresis" appears to be an acronym that stands for "heparin-induced extracorporeal LDL precipitation". It appears to be a commercialized product: https://www.bbraun.com/en/products-and-therapies/extracorporeal-blood-treatment/apheresis.html

Wonder what it would cost in the US.

 

[Countrygirl]

I think I was on the right track when I ask many times if anybody was tested for thrombosis (D-Dimere). Apheresis is dissolving the Clots, blocking alveole. Alveoles are small pit, cavity, or saclike dilation, such as a honeycomb cell in the lung.

Apparently, the tests for blood clotting don't detect it. Asad said his tests didn't, yet his blood is so thick it has clogged the machine a number of times.

 

[SWAlexander]

I am told plasmapheresis is a different process to what is happening in Germany.

You´r right, it is. But the machine is basically the same and can be adjusted. It is all about washing blood and removing solutes.

 

[Martin aka paused||M.E.]

plasmapheresis or apheresis in the U.S.

I'm pretty sure it's not H.E.L.P. apharesis in the US you are talking about.

 

[Martin aka paused||M.E.]

You´r right, it is. But the machine is basically the same and can be adjusted. It is all about washing blood and removing solutes.

I think it's about different filters that are used

 

[SWAlexander]

I think it's about different filters that are used

Its also a Heparin-wash. Still surching for clarity.

 

[Martin aka paused||M.E.]

It's definitely worth a try... I will contact Dr Jaeger on Monday

 

[SWAlexander]

Apparently, the tests for blood clotting doesn't detect it. Asad said his tests didn't, yet his blood is so thick it has clogged the machine a number of times.

Wow, that is interesting. Wonder what test would find it.

 

[SWAlexander]

View attachment 45215
It's definitely worth a try... I will contact Dr Jaeger on Monday

I know I´m intruding here. But, would you pleeeease ask him if it is true that it also take out needed nutrigens? In case of a yes, mabe they are easley replaced? Thank you.

 

[SWAlexander]

Can anyone find the papers from either the 80s or 90s which claimed that we had 'sticky' blood, please?

I know MERUK published two papers which revealed that the endothelium of our blood vessels was severely damaged while others described how our red blood cells are too rigid to pass through the capillaries.

When I had some genetic testing a year ago, they notified me that I was prone to a blood clotting disorder. I have been having superficial blood clots blocking blood vessels since I was 15, and in recent years TIAs and strokes.

I wonder if others had such evidence of having 'sticky' blood, Hughes Syndrome/Antiphospholipid Syndrome?

"I was prone to a blood clotting disorder."
Me too - after 10 months now I still have thrombosis in spite of taking blood thinners. It´s a MTHFR problem.

Clinical trial CRP apheresis after myocardial infarction published
https://www.pentracor.de/en/news/klinische-studie-zu-crp-apherese-nach-herzinfarkt-veroeffentlicht/

 

[Countrygirl]

https://www.bbc.co.uk/sounds/play/m0010pzx

Dr Jaeger talking to the BBC at 5 minutes and 1 hour 7 minutes.
She is asked if it works for ME and says it does.
She has treated 107 patients so far.

 

[Keats]

This is the most exciting thing I’ve read for years. So grateful to Dr Asad Khan for including ME patients in all his Long Covid posts, right from the beginning.
Now we have to find funding!

 

[Martin aka paused||M.E.]

https://www.bbc.co.uk/sounds/play/m0010pzx

Dr Jaeger talking to the BBC at 5 minutes and 1 hour 7 minutes.
She is asked if it works for ME and says it does.
She has treated 107 patients so far.

We decided to found an NGO to collect money for a first study. Maybe she agrees. If not, there are many docs with H.E.L.P. in Germany

 

[Molly98]

Very exciting development, I will watch with interest.
@Countrygirl my beautiful friend ❤ ❤ how have you been? Will dm you when I feel up to writing more

 

[5vforest]

I'm pretty sure it's not H.E.L.P. apharesis in the US you are talking about.

Correct, I just have a reference point for apheresis / plasmapheresis / dialysis. I assume HELP apheresis would be more costly, not less. My point being that 1300 euro strikes me as them trying to earnestly make it as affordable as possible.

 

[SWAlexander]

We decided to found an NGO to collect money for a first study. Maybe she agrees. If not, there are many docs with H.E.L.P. in Germany

If Dr. Jaeger's method will have a positive peer review, quite a lot of money will come from health insurance.

 

[andyguitar]

It's definitely worth a try... I will contact Dr Jaeger on Monday

Good luck with it @Martin aka paused||M.E.