Gingergrrl
Senior Member
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- 16,171
I know we have several threads on IVIG but now that my doctor has just sent in the pre-auth to my insurance, I realized that I wanted to do a quick survey to compare people's experiences and have the info all in one place.
If you have ever done IVIG, I would love to hear your answers and thank you all in advance!
Here are my questions:
1) What brand of IVIG did you use and did you have any side effects?
2) Did you do the immune deficiency dose or the higher autoimmune dosing?
3) If you remember, what was your exact dose and infusion speed per infusion?
4) How frequently were your infusions (once a week, once a month, etc) and did you have an initial "loading dose?"
5) Do you have MCAS and if so, did you get any allergic reactions to the IVIG?
6) Did you take any pre-meds prior to each infusion and if so, what were they? (i.e. Steroid, H1 and H2 blocker, etc)
7) How long in duration did you do the IVIG (three months, six months etc?) or is it ongoing?
8) Are there any tips to getting insurance to authorize?
9) Did you do IV saline or dextrose solution with the IVIG?
10) How much water did you drink on day of IVIG and day prior?
11) Did it ultimately improve your symptoms and if so, which ones? And on flip side, did it not work or worsen your symptoms?
12) Is there any key info or tips that I am forgetting?
Thank you so much for any responses!
If you have ever done IVIG, I would love to hear your answers and thank you all in advance!
Here are my questions:
1) What brand of IVIG did you use and did you have any side effects?
2) Did you do the immune deficiency dose or the higher autoimmune dosing?
3) If you remember, what was your exact dose and infusion speed per infusion?
4) How frequently were your infusions (once a week, once a month, etc) and did you have an initial "loading dose?"
5) Do you have MCAS and if so, did you get any allergic reactions to the IVIG?
6) Did you take any pre-meds prior to each infusion and if so, what were they? (i.e. Steroid, H1 and H2 blocker, etc)
7) How long in duration did you do the IVIG (three months, six months etc?) or is it ongoing?
8) Are there any tips to getting insurance to authorize?
9) Did you do IV saline or dextrose solution with the IVIG?
10) How much water did you drink on day of IVIG and day prior?
11) Did it ultimately improve your symptoms and if so, which ones? And on flip side, did it not work or worsen your symptoms?
12) Is there any key info or tips that I am forgetting?
Thank you so much for any responses!