Gingergrrl
Senior Member
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- 16,171
I was able to get to this sooner than I thought and here is the link @Vineyard1 for IVIG vs. SCIG:
http://www.ipopi.org/uploads/Duff IVIg and SCIg 7.pdf
Also @Vineyard1, when you said that your doctor said that 40 grams was the max dose for your weight, I assume he meant for immune deficiency but not if you were doing the higher autoimmune dosing? My docs said that the autoimmune dosing is 4x higher than the immune deficiency dosing but it is doubtful I would ever tolerate it and too risky so I am starting with a lower dose for the first one to see how it goes. Am sorry about your new episode of POTS and hoping you get some improvement soon. Thank you again for all of the info and the healing thoughts.
I also wanted to ask you, @helen1 a few questions after reading your responses... I was curious which brand of IVIG you use (if you know) and also when you said you drink 2-3 extra cups of water on the day of IVIG, how much do you normally drink? I struggle with drinking water but know this is crucial with IVIG and am trying to get a sense with how much total water people are drinking on the day before and the day of. Thanks again.
http://www.ipopi.org/uploads/Duff IVIg and SCIg 7.pdf
Also @Vineyard1, when you said that your doctor said that 40 grams was the max dose for your weight, I assume he meant for immune deficiency but not if you were doing the higher autoimmune dosing? My docs said that the autoimmune dosing is 4x higher than the immune deficiency dosing but it is doubtful I would ever tolerate it and too risky so I am starting with a lower dose for the first one to see how it goes. Am sorry about your new episode of POTS and hoping you get some improvement soon. Thank you again for all of the info and the healing thoughts.
I also wanted to ask you, @helen1 a few questions after reading your responses... I was curious which brand of IVIG you use (if you know) and also when you said you drink 2-3 extra cups of water on the day of IVIG, how much do you normally drink? I struggle with drinking water but know this is crucial with IVIG and am trying to get a sense with how much total water people are drinking on the day before and the day of. Thanks again.